trintiybella Posted February 17, 2015 Report Share Posted February 17, 2015 Not sure what to do next. Everything we try with this child makes her so aggressive. Even Motrin. It seems if I go high on anything, even supplements, she flips out. Kind of nervous about her future. I guess we're looking at IVIG sOon😜 Link to comment Share on other sites More sharing options...
PowPow Posted February 18, 2015 Report Share Posted February 18, 2015 Has someone ordered IVIG? Would she even cooperate with an IV? If there are no concrete markers for PANDAS (just looking at your tagline) and everything seems to not be helping, maybe IVIG is not the best route. I am only going off what you post on here and on your tagline~ but personally, with any evidence that it might help, i would not give my child IVIG. Is she on the autism spectrum at all? Link to comment Share on other sites More sharing options...
rowingmom Posted February 18, 2015 Report Share Posted February 18, 2015 Why go high on anything? Â Your daughter has bartonella/lyme. Have you tried low doses of antimicrobial/anti-inflammatory herbs for her infections? Herbs are not as potent as antibiotics, and you can dose them carefully to avoid too much herxing. Â Our daughter is now asymptomatic for the bartonella/lyme/PANS symptoms she once had; and has been so for more than a year now. She has had the flu (and even a fever!) and a couple other viruses with no relapse. Â She reached remission with the addition of babesia herbs to Buhner's bartonella protocol. We had no idea babesia was involved because she had tested negative for both strains and showed no babesia symptoms. Link to comment Share on other sites More sharing options...
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