ssfkat Posted February 16, 2015 Report Share Posted February 16, 2015 http://www.ctvnews.ca/video?clipId=551311&playlistId=1.2235664&binId=1.811589&playlistPageNum=1&binPageNum=1&hootPostID=ec940f3c5e0e1cb36ec058e75da50411 This features Beth Malony, author of "Saving Sammy". Great interviews with mothers of PANDAS kids. My only concern is that the general medical community is just now scratching the surface of the strep connection, but it seems that strep is just the tip of the iceberg, and so many other things can cause neurological problems, hence PANS is more encompassing. Still, it's a start. Link to comment Share on other sites More sharing options...
MaryAW Posted February 20, 2015 Report Share Posted February 20, 2015 I know this is weird, but I almost feel that PANDAS publicity does a disfavor to our PANS children, and to undiagnosed PANS children. If a child tests negative for strep, no PANDAS. The focus needs to become on PANS. It also seems that the medical community is more accepting of PANS, then it ever was of PANDAS. Link to comment Share on other sites More sharing options...
nicklemama Posted February 22, 2015 Report Share Posted February 22, 2015 You've got to start somewhere. If you start with the basic understanding and doctors can get onboard,mother they are prepared to move the paradigm a bit further and explore other triggers. I had my two seconds of fame. I'm standing behind Beth when she is seated at a table! Link to comment Share on other sites More sharing options...
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