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ssfkat

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http://www.ctvnews.ca/video?clipId=551311&playlistId=1.2235664&binId=1.811589&playlistPageNum=1&binPageNum=1&hootPostID=ec940f3c5e0e1cb36ec058e75da50411

 

This features Beth Malony, author of "Saving Sammy".

 

Great interviews with mothers of PANDAS kids.

 

My only concern is that the general medical community is just now scratching the surface of the strep connection, but it seems that strep is just the tip of the iceberg, and so many other things can cause neurological problems, hence PANS is more encompassing.

 

Still, it's a start.

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I know this is weird, but I almost feel that PANDAS publicity does a disfavor to our PANS children, and to undiagnosed PANS children. If a child tests negative for strep, no PANDAS. The focus needs to become on PANS. It also seems that the medical community is more accepting of PANS, then it ever was of PANDAS.

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You've got to start somewhere. If you start with the basic understanding and doctors can get onboard,mother they are prepared to move the paradigm a bit further and explore other triggers.

 

I had my two seconds of fame. I'm standing behind Beth when she is seated at a table!

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