Jump to content
ACN Latitudes Forums

Anyone know of a PANDAS/PANS specialist in the UK?

Recommended Posts


I suspected my son has PANDAS & showed a paediatrician a PANDAS leaflet. He'd never heard of it & was baffled but he finally agreed to add ASO test to his list of routine blood tests.

1 month later the test results all came back normal. He said that it indicated no recent strep infection & did not want to discuss the PANDAS route anymore. He just said that some children who've had several infections/ ill health take a long time to recover, this would explain the behavioural changes & that tics are quite normal for some children & they usually grow out of them - he wants to discharge us but I've insisted we see him even if its once a year.

I have since found out that just because the ASOt was normal its doesn't rule out PANDAS /PANS.

My sons still has constant tics, anxiety & meltdowns 2years after having scarlet fever.

I'm looking for a PANDAS specialist in the UK who can help him.

thank you :)

Link to post
Share on other sites

Hi Tiger,


I'm posting a link to a 2012 conversation about practitioners in the UK, just in case you haven't seen it. Wombat has been active again recently on this forum.



I suspect you will have to do some ringing around until you find someone who sounds like they may be able to help. I think your best bet will be those medical practitioners who have recently trained in the DAN (Defeat Autism Now!) protocols - it's called something else now (MAPS) - see: http://www.medmaps.org/ They have a list of practitioners who've done this training, but I didn't see anyone on the list for the UK, but I do think it's a very abbreviated list. I suggest you contact them and see if they can put you onto someone near you who has done their training. PANDAS/PANS is one of the topics in the training they offer medical practitioners. Good luck!

Link to post
Share on other sites

Hi Ozimum thanks,

thats really helpful, I've had a read of the thread & have started looking, I was hoping to go with someone called Dr. Daniel Goyal apparently he's

well known for PANDAS treatment but he has stopped practising :(

The quest continues.....

much appreciated xxx

Link to post
Share on other sites

There was a PANDAS conference in Ireland recently with Irish drsattending, not England but could that be an option


Here's the link to the site




Perhaps pandas Ireland can point u to drs that attended or may know of drs in england


Good luck

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Create New...