Jamilla Posted October 15, 2014 Report Share Posted October 15, 2014 Dear friends, can anyone advise a doctor familiar with PANDAS in Dubai? It is for my 7 years old son with a positive throat lab to strep A. Many thanks, Jamila Link to comment Share on other sites More sharing options...
pr40 Posted October 16, 2014 Report Share Posted October 16, 2014 i've been on this forum for several years and haven't read of any drs outside Europe mentioned. if you cannot find a pandas specialist, you do have other options like an open minded pediatrician, immunologist, rheumatologist, even neurologist. you can give them this resource https://www.pandasppn.org/ in many cases, especially with pedis, parents have to educate the dr about PANDAS. show that there is an NIH protocol on what to do when strep causes behavioral and neurological problems. Link to comment Share on other sites More sharing options...
Jamilla Posted October 16, 2014 Author Report Share Posted October 16, 2014 Thank you pr40, still struggling to find someone here who would understand what I am talking about ... . Link to comment Share on other sites More sharing options...
pr40 Posted October 16, 2014 Report Share Posted October 16, 2014 try to find a dr who would be willing to review the materials available through NIH and on the above website, and prescribe prophylactic abx. Link to comment Share on other sites More sharing options...
EAMom Posted October 20, 2014 Report Share Posted October 20, 2014 (edited) I did meet a PANDAS parent from Dubai 2-3 years ago, at the Chicago IOCDF conference. I think she was American and I suspect they traveled to the US for treatment, not sure. I don't remember her name. (Okay, that wasn't really helpful, was it.) I second the recommendation for PPN. Also, Dr. Trifiletti (NJ) does phone consults. Edited October 20, 2014 by eamom Link to comment Share on other sites More sharing options...
EAMom Posted October 20, 2014 Report Share Posted October 20, 2014 (edited) Dh reminded me that this parent told him you can get antibiotics w/out a prescription in Dubai. Is that true? That would make things easier. Edited October 20, 2014 by eamom Link to comment Share on other sites More sharing options...
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