searching_for_help Posted October 12, 2014 Report Share Posted October 12, 2014 I contacted NIMH for info on PANDAS for our doc. They suggested this website: https://www.pandasppn.org/ I research PANDAS daily, and never ran across this site before. Was anyone else aware of this? lulu4, MaryAW, momofadult and 1 other 4 Link to comment Share on other sites More sharing options...
MaryAW Posted October 13, 2014 Report Share Posted October 13, 2014 WOW! How exciting! This is great, and, no, I've never seen this before. I will tell my dd's pediatrician about it. What a great resource. I would recommend anyone to go to this website to find out more about PANS/PANDAS. This should be PINNED here on Latitudes. Link to comment Share on other sites More sharing options...
BeeRae22 Posted October 13, 2014 Report Share Posted October 13, 2014 Thanks for posting! I hadn't seen this either, and I'm also searching for info all the time! Link to comment Share on other sites More sharing options...
Mayzoo Posted October 13, 2014 Report Share Posted October 13, 2014 (edited) I noticed ACN Latitudes was not listed under parent resources. How can we get that fixed ? Edited October 13, 2014 by mayzoo MomWithOCDSon 1 Link to comment Share on other sites More sharing options...
qannie47 Posted October 13, 2014 Report Share Posted October 13, 2014 Never saw it before. Thanks for sharing! Link to comment Share on other sites More sharing options...
PowPow Posted October 13, 2014 Report Share Posted October 13, 2014 (edited) Wow. Thank you to this foundation (which must have a real person behind it somewhere:) clearly created by a wonderful, tireless advocate for our children! Edited October 14, 2014 by powpow T_Mom 1 Link to comment Share on other sites More sharing options...
momofadult Posted October 21, 2014 Report Share Posted October 21, 2014 Terrific! Thank you. Link to comment Share on other sites More sharing options...
norcalmom Posted October 31, 2014 Report Share Posted October 31, 2014 The site is awesome. Its copyrighted 2014 - its pretty new. Its kind of exciting....heretofore all the sites have been parent patient initiated or single doctor (with just a page...) the site is very polished, easy to navigate... The list of its members its great...although I don't see Agalliu on there...hmmm they are asking for funding for him on one of there pages, they should get his name on there too... Thanks so much for posting and finding! T_Mom 1 Link to comment Share on other sites More sharing options...
T_Mom Posted November 1, 2014 Report Share Posted November 1, 2014 A very pro-active site!!! Way to go to "whomever" is the "muscle-guy" heavy-lifter behind this effort!!! THANK YOU! (again no doubt !) Link to comment Share on other sites More sharing options...
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