Pandas Physicians Network website - who knew?

[searching_for_help]

I contacted NIMH for info on PANDAS for our doc. They suggested this website:

 

https://www.pandasppn.org/

 

I research PANDAS daily, and never ran across this site before. Was anyone else aware of this?

[MaryAW]

WOW! How exciting! This is great, and, no, I've never seen this before. I will tell my dd's pediatrician about it. What a great resource. I would recommend anyone to go to this website to find out more about PANS/PANDAS. This should be PINNED here on Latitudes.

[BeeRae22]

Thanks for posting! I hadn't seen this either, and I'm also searching for info all the time!

[Mayzoo]

I noticed ACN Latitudes was not listed under parent resources. How can we get that fixed ?

Edited October 13, 2014 by mayzoo

[qannie47]

Never saw it before. Thanks for sharing!

[PowPow]

Wow. Thank you to this foundation (which must have a real person behind it somewhere:)

clearly created by a wonderful, tireless advocate for our children!

Edited October 14, 2014 by powpow

[momofadult]

Terrific! Thank you.

[norcalmom]

 

The site is awesome. Its copyrighted 2014 - its pretty new. Its kind of exciting....heretofore all the sites have been parent patient initiated or single doctor (with just a page...) the site is very polished, easy to navigate...

 

The list of its members its great...although I don't see Agalliu on there...hmmm they are asking for funding for him on one of there pages, they should get his name on there too...

 

Thanks so much for posting and finding!

[T_Mom]

A very pro-active site!!! Way to go to "whomever" is the "muscle-guy" heavy-lifter behind this effort!!! THANK YOU! (again no doubt !)