DanL Posted September 6, 2014 Report Posted September 6, 2014 Anyone have experiences with PANDAS seeing white spots on ceiling or White squares in sky?
MaryAW Posted September 7, 2014 Report Posted September 7, 2014 Yes, my DD had that at initial onset and it lasted for a while. The "experts" at Yale were clueless! To be fair this was 3 years ago and I think they've come a long way since then in their understanding of PANS. From what I've heard at conferences this a sign of encephalitis (inflammation of the brain). I don't know what your overall protocol is but giving ibuprofen should help greatly in reducing the inflammation. Omega 3's and the antibiotics are also anti-inflammatory.
sf_mom Posted September 8, 2014 Report Posted September 8, 2014 They are called "Floaters". You can google. Our older son had them as well at one time.
MaryAW Posted September 13, 2014 Report Posted September 13, 2014 Actually what my DD had was not floaters. She described what she saw as gold spheres(in different shapes) of light that she felt like she could reach out and touch.
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