Who doesn't do Prophylaxis? who who?

[DanL]

Does anyone out there NOT do prophylaxis and does good this way? Or treat as symptoms comes? My kids have just mild symptoms/flares...maybe 5 since February Like Repeating statement, urine urgency, wets bed. Reassurance.

 

If not doing prophylaxis, any other measure used to prevent re infection?

 

[dcmom]

We have not been doing prophylaxis for probably 4 years and my kids are better than ever! We still see flares, and treat them with minocyclene and/or steroids (IV). We recently added low dose prozac to my younger pandas dd who just could not get to 100%- now she is 110%!

 

We see a very well regarded NYC neurologist who does NOT believe in prophylaxis!

[frikfrak]

Hi dcmom,

 

Could you PM me the name of your neurologist please.

 

thanks

frikfrak

[NYCMom]

We stopped for 2 yrs, but then ds contracted strep followed by Lyme so we've been back on prophylactics since.

During the 2 yrs we just concentrated on reducing sugar, gluten, etc and took probiotics as often as we could remember. Not always 100% during that period but pretty darn close.

 

dcmom - ditto for me, could you please pm me the neurologist in NY? thx.

[Hrosenkrantz]

DCmom -- i'm curious about why doctor doesn't believe in prophlaxis....

I've had a couple of doctors suggest the same thing recently to me but I do not fully understand the reason -- is doctor opposed, or just thinks it does not do anything so why keep pumping the kid with abx?

[dasu]

One of our doctors - an ENT - has claimed that prophylactics arent needed after a T&E.

 

We do herbal prophylactics now.