Need advice Please!

[khodge]

Hello

 

So I am 24 years old with severe ocd and was recently suspected to have PANDAS and I am feeling very frustrated. The psychiatrist I saw who suspected PANDAS ran an aso titer test once and prescribed me Zoloft. the Zoloft ended up making things worse for the third ssri in a row. so I recently contacted the office where I go for my anxiety which also is a center that specializes in PANDAS and I cant be seen because I am over 18. So I asked for a referral to a specialist that would see me and had no response. So I asked the psychologist that I see at the center for some resources and he referred me to another psychiatrist for more medication. I am really confused what to do because the people that are able to help me are not allowed nor can I get any information from them which is making me really frustrated. so I have searched up and down for help and I just feel extremely overwhelmed. my psychologist is telling me not to search for doctors but the doctors I am seeing are not providing me with any help at all. they just what to keep trying different meds and one failed attempt after another has made me severely hopeless. I don't think im looking for anwers as much as I am looking to just rule this out but (excuse my language) this whole situation pisses me off. And both my parents work full time to pay the bills and they don't know much about this either. So I almost feel like I have no other option but to just give up. so I guess what I am asking is that if someone on here over the age of 18 that has these issues, knows somebody that can give me a second opinion, or run test's to shed some light on this for me? I would greatly appreciate it. because all of this stress is driving me up a wall. Sorry for the Rant.

 

Thank you,

ken

Ken

Edited July 24, 2014 by khodge

[Rachel]

Hi and welcome to the forum. I would encourage you to look for another doctor that can help. I found an article on OCD and adults. Maybe this this will help and hopefully some else on the forum can recommend a doctor that sees OCD adults.

 

http://www.turkpsikiyatri.com/C18S3/en/therapeuticResponse.pdf

 

I have a son that has a vocal tic disorder and ran across this article awhile back.

Edited July 24, 2014 by rachel

[pr40]

you don't identify where you are. That info might help in figuring out if there are pandas drs close by.

the situation, as you describe it, offers one possibility. even if PANDAS drs can't see you, they could refer you to someone in your area who might be able to start treating you for PANDAS. have you tried to do that?

you have one additional option, something you might have tried already. The psychiatrist who suggested you have PANDAS and gave you zoloft. If you inform that person about NIH protocol, which is long term abx, not Zoloft, perhaps you would have some luck in getting him/her to start you on abx.

good luck!

[khodge]

hey guys

thank you for the response. I live in Florida and am currently going to the rothman center for cbt that hasn't been helping much. my psychiatrist that suspected Pandas gave me an Aso titers test that was 385 so he gave me antibiotics for one month then stopped and continued with Zoloft. I asked if I need anymore tests an he said no. I also asked the rothman center if Tanya murphy could refer me to someone else that can see me and I never got a response back. and I recently got an immunoglobulin test from an allergist but I don't think he thinks there is a connection. but he tested igg, iga, and igm. but there were only three numbers and I thought there were subclasses and other things involved. But I did find a environmental physician that may be able to help but I don't know.

Edited July 25, 2014 by khodge

[Rachel]

Here are a couple more articles that may help you.

 

http://beverlyhillsshrink.blogspot.com/2012/03/adult-pandas-bare-facts.html

 

http://www.psychologytoday.com/blog/attention-please/201107/evil-pandas-part-ii-adult-affliction-treatment

Edited July 25, 2014 by rachel