BeeRae22 Posted June 16, 2014 Report Share Posted June 16, 2014 Happy news and I had to share-- I'm bursting at the seams!!!! Last night dd started eating! 2 pieces of bread, 2 pieces of cake, 2 cookies (even had chocolate chips in them!), a Popsicle, and then a personal sized homemade pizza- ate almost the whole thing!!! This is the most she's eaten since NOVEMBER!!!!!! And she had cake for breakfast this morning, and was asking for more pizza!!!!!! I sure hope this continues. I am so thankful for this victory. It's probably hard for someone who's never experienced this how f@)$&@;king happy someone could be to see someone do something so "simple" as eating!!! I'm ecstatic! Day 12 minocycline.... Coincidence? I think not!!!! Each time she's tried a new abx she's seen improvement at approx 2 weeks, but this is the first time eating has happened!!! I'm sure the CBT has helped (well, maybe, I'm not exactly SURE about that) but I don't think therapy made her suddenly pig out like that. That was too sudden for response to exposure therapy in my opinion. Whatever it is, I'm thankful. And I'll keep doing everything we're doing and hope and pray this progress continues!!!! JuliaFaith, rowingmom, SSS and 2 others 5 Link to comment Share on other sites More sharing options...
qannie47 Posted June 16, 2014 Report Share Posted June 16, 2014 This is soooo wonderful, and while I am lucky that my child has never restricted food, the victories that we needed to experience sent me over the moon with joy!!!!! So I can understand how you are feeling. Enjoy your victory!!!! I am so happy for you and yours. BeeRae22 1 Link to comment Share on other sites More sharing options...
putting together the piece Posted June 16, 2014 Report Share Posted June 16, 2014 So happy for you!!!!!! BeeRae22 1 Link to comment Share on other sites More sharing options...
Mayzoo Posted June 16, 2014 Report Share Posted June 16, 2014 Congrats, mine stopped eating for a few weeks as well. I get thrilled now when I have to tell kiddo to turn the TV down LOL. How many parents grin ear to ear to hear a TV on to loud HAHAHA. BeeRae22 1 Link to comment Share on other sites More sharing options...
dcmom Posted June 16, 2014 Report Share Posted June 16, 2014 Omg- enjoy! let the healing begin!!! BeeRae22 and Hrosenkrantz 2 Link to comment Share on other sites More sharing options...
pr40 Posted June 16, 2014 Report Share Posted June 16, 2014 (edited) I am so happy for you, too. I think I remember that your dd is seeing dr L. If that is correct, I hope you share the info with him. did he prescribe abx? Edited June 16, 2014 by pr40 Link to comment Share on other sites More sharing options...
bigmighty Posted June 16, 2014 Report Share Posted June 16, 2014 Thanks for sharing the great news! Very hopeful that it continues. Link to comment Share on other sites More sharing options...
Rachel Posted June 16, 2014 Report Share Posted June 16, 2014 I'm very excited that she has started eating again. Is this the first time she has been on minocycline? From what I have read this is not an antiboitic that is normally used to treat PANDAS. So this is very interesting. Wishing you and your daughter the best and let the HEALING begin. Keep us posted. Link to comment Share on other sites More sharing options...
LNN Posted June 16, 2014 Report Share Posted June 16, 2014 Fingers crossed that it continues! If you can, focus on replacing some lost nutrients that she may be lacking - or see if you can get her to swallow a multivitamin and then let her indulge in anything she wants! Link to comment Share on other sites More sharing options...
putting together the piece Posted June 17, 2014 Report Share Posted June 17, 2014 LLM is right. Now that she is eating you need to get the nutrients in her that she was missing. Try to reintroduce the healthy stuff along with the yummy stuff. Link to comment Share on other sites More sharing options...
BeeRae22 Posted June 17, 2014 Author Report Share Posted June 17, 2014 I don't want to push her too much right now, I'm just happy she's eating! Not as much as she did Sunday night, but she's eaten a little something morning and night so far, and that's huge!! Rachael, this is the first run of minocycline. She's also on azithromiacin and Bactrim, and Clak & drainage tone for detox. We suspect bartonella, and that's the reasoning behind the Mino. And true to her pattern, dd showed improvement at right around 2 weeks of new antibiotic-- although this is the first time eating has happened!! Pr40- I spoke to Dr. L but he's not the one treating her... She sees one of his colleagues for CBT. He knows her Pans doc, and sits on the pandas advisory board with him. I am sitting in the waiting area of his offices right now, in fact! If I see him walk by, I'll share the good news 8 months was such a long time to go without her eating willingly.... She's sticking to pizza and choc cake for now and I'm okay with that. Hopefully she'll branch out and be on the road to health. I'm praying that her recovery continues. Link to comment Share on other sites More sharing options...
dcmom Posted June 17, 2014 Report Share Posted June 17, 2014 Beerae- Totally agree- any eating now is of great value- forget about worrying about getting healthy foods in, until her eating has stabilized. Our doctor uses mino as the only abx for pandas- it is used for brain inflammation as it crosses the BBB. Link to comment Share on other sites More sharing options...
mama2alex Posted June 18, 2014 Report Share Posted June 18, 2014 Wonderful news!!! Link to comment Share on other sites More sharing options...
searching_for_help Posted June 18, 2014 Report Share Posted June 18, 2014 I am SO VERY HAPPY for you! Gives us some hope when things aren't very good around here. Link to comment Share on other sites More sharing options...
trintiybella Posted June 18, 2014 Report Share Posted June 18, 2014 I am so happy for you!!! Hope it happens here. My girl here. My girl is losing so much weigh from anorexia. Such a worry. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now