So when will the flare end?

[3bmom]

When we were at our worse strep was a culprit but the major player was Herpes Virus, so check HSV 1,2,6. Huge gains for us. Also our family is asymptomatic and we found it in all 3 boys. Titers were up to 20X higher than normal.

 

When ever I think we might be going into a flare our DR makes us write down everything we eat and than we can catch our slip ups.

[Dedee]

When I am desperate and the flare seems never ending I result to steriods. We are dealing with Lyme and most people say never use steriods with Lyme patients but my daughter responds beautifully to steriods and it's often the only thing that will stop or lower a flare for us. When I went to the West Coast Conference that is what all the physicians were discussing for bringing these kids back. I have to say, I don't know what I would do if I couldn't do a burst when times are critical.

 

Dedee