Request for success stories please!

[P_Mom]

HI! I have been gone from this forum for years, but, received an email notification that I was sent a pm! Imagine my surprise. So I browsed a bit and found this. I will just briefly say that I have (had ) two PANDAS boys. Onsets age 4 (severe) and 7 (mild/moderate). This happened after they both had strep in August 2007..... onsets were weeks apart. Our world was turned upside down....to put it lightly. Fast forward 7 years. Ages 11 and 14 now and BOTH sons are absolutely thriving......not even the most seasoned PANDAS parent would ever guess in a zillion years either of my sons ever had an issue. Hang in there. Time is your biggest healer.

[ibcdbwc]

P-Mom, what treatments did you use?

[P_Mom]

Abx., t/a removal, steroids twice for younger son (which were amazing) That is it. I'd give them a multi vitamin, fish oil and probiotics a few times a week too.

[qannie47]

p mom Thanks for sharing! These success stories truly transcend hope. While I had great success with IVIG as you all know. I truly felt like it was the t/a that was as important, if not more beneficial then even the IVIG.

Edited April 13, 2014 by qannie47

[julesmom]

My daughter's symptoms started around 5 yo. They were pretty severe. Antibiotics didn't touch it. We had 6 rounds of HD IVIG with amazing results. We saw some minor flares after infections but nothing compared to original symptoms. What I found extremely helpful was liposomal colostrum. I will keep her on it thru fall and winter. She seems to do pretty good in summer.  Ill also treat with D with K throughout year