Lingering Symptoms

[Lydiasmum]

Hi all. I am pleased to say that for now (knock on wood) my DD (nearly 6) is 'stable' and has been this way for 4 months. She has been on prophylaxis erythromycin for 8 months now following last flare in August 2013 which continued until November. (What is it about the month of August?).

 

Despite her being 80-90% good, there are a few lingering symptoms:-

 

- A red ring around anal area that comes and goes (seems to improve with Sudocream?) mildly itchy but mainly sore. Odd looking bright red area with definite margin (looks like it has been drawn on with red felt pen!!). Have had a swab in the past but would regard it inconclusive as too much time went by between taking swab and getting test. Only (normal) anaerobes detected. It doesn't appear to be thrush, although I have no proof of this.

 

- intermittent stuttering usually the letter w or s (sssswwwwimming) or (wwwhere..). Speech is mainly OK but the odd stutter is getting more regular in conversation.

 

- movement 'mannerisms' these movements are not exactly tics as they are not repetitive or quick. They are more like excessive movements following the norm (arms will go down by her side and she'll do a little tense posture - if she is pushing a swing in the park her arms will do extra movement as the swing moves away from her body as if she's still pushing. (Sorry, hard to describe). She does get a little hyper in the evenings too but nothing like the full-scale dilated pupil episodes of the past.

 

- toy obsession continues - she is well into The Lion King (has been her latest craze for 6 months). You can play with other toys and she will talk about other topics if encouraged, but leave her to her own devices she will draw, write about, read about, talk about and watch The Lion King all day long from the minute she wakes. This may be normal nearly-6-years old stuff and it doesn't interfere with our lives to any real extent, she is just so repetitive in her interest.

 

Can anyone relate? Have advice? Apart from the above my girl is generally happy and settled. Her mild anxiety is at an all-time low currently I am holding my breath slightly as our pattern of episodes have been April and August..(strep. confirmed 4 weeks prior to last onset). She appears to have some Asperger's traits but they come and go and I don't think would warrant a diagnosis.

 

I want to take this opportunity to thank all the lovely mums on this forum. I am quite new here and am suffering from anxiety since DD's ferocious onset Summer 2012 (manifested as huge anxiety and multiple vocal/motor tics). I am looking to the doctor for medication myself to deal with the awful state of mind I am now in, totally obsessing and living in fear of the PANDA. I am struggling with neurologists who 'don't believe in PANDAS' or 'don't have any knowledge of it' and this forum is really my saving grace. So thank you and bless you and your families.

Edited April 3, 2014 by lydiasmum

[SSS]

Hi-

Red ring around the area you are describing indicates yeast,

from our former bio med Dr. and others.

Just wanted to chime in on that part--

[ibcdbwc]

Would also say that we have had multiple times, perianal strep. It also presents as bright red. DS complains more of pain than itch when he has perianal strep. Of course we've also had yeast and that results in similar red but an intense itch.

Lastly, it could be compulsive wiping or allergy to some product that makes things come and go.

[Missmom]

My son has also had the red ring appear from time to time, although not consistent. He says it is sore not itchy. I always assumed it was just from not wiping or drying correctly (moisture). I usually just put desitin diaper rash ointment and it got better. It has not bothered him in a while so I really have never given it another thought. I guess it could have been yeast as well but never treated for yeast and have not had any complaints.