New Member Immunologist

[CYAZ]

I was wondering if anyone has any helpful tips to when seeing an immunologist. My son was diagnosed in Dec of last year. Several years looking for answers. He is currently seeing a Maps and taking antibiotics. He has a symptoms that come and go. 2 weeks out of the month doing pretty goo. 1 week of total rage and tics, then 1 week of lethargy. Its almost the same pattern every month.

 

I also wanted to see if anyone had any luck with any Doctors in Arizona.

 

Thank you,

 

C

 

[pr40]

make sure to check Lyme with Igenex. the regularity, if I understand this one correctly, suggests a bacterial cycle. I assume you saw suggested blood tests under the pinned materials.

Edited March 30, 2014 by pr40

[rowingmom]

I was going to suggest bacterial cycling as well. Lyme has a 4 week cycle, babesia every few days, bartonella every 5 days.

[sf_mom]

I have heard great things about Envita in AZ. I am not sure if you have checked for Lyme yet but I think they can help with extensive testing.

 

http://www.envita.com

[CYAZ]

Thanks for the suggestion. I'am sorry I should have said diagnosed with PANDAS in December although symptoms have been bad for at least 3 years. My son has muscle twitches and the rage for 1 week. He does seems to have an extreme bacteria load this one week. It shows in his behavior which it ankle walking, irritable, easy to rage, night wakings with rage, biting and crying trying to hit, this last for around 20 minutes then he becomes absolutely still like the rage leaves, or he's exhausted? This 1 week sleep is very bad and can wake up with rage every two hours. The next week this behavior diminishes totally. He then may go back to being an all night sleeper and calm, happy, sweet dispotition. No signs of rage at all.

 

I think this is more than PANDAS. I am seeing this immunologist first then going to try to get an Igenex test through him or MAPS.

 

I will look for the pinned material and suggested blood work.

 

 

I was going to suggest bacterial cycling as well. Lyme has a 4 week cycle, babesia every few days, bartonella every 5 days.

What does this mean. Lyme has a 4 week cycle? Babesia every few days, bartonella every 5 days? Do you mean the bugs repopulate on this cycle?

[rowingmom]

The bacteria sequester in areas where it is hard for the immune system to track them - lyme often in tendons, joints, cartilage (areas of lower blood flow); bartonella in endothelial tissue and red blood cells; babesia in red blood cells. All of them can pass the BBB as well.

 

All of these infections are transferred through biting arthropods. Depending on the timing of their cycles, they leave the infected tissues and enter the blood stream where they become available to their arthropod vectors and thus more readily transferred from animal to animal. At this point they are circulated more widly through the body and are probably more vulnerable to the immune system or antibiotics. Thus the cyclic fevers and symptoms.