pr40 Posted March 11, 2014 Report Share Posted March 11, 2014 (edited) dd10 is doing better than ever in the last two years. 10 days ago, however, her RLS started again and is worse than ever. I am giving her 5htp before bedtime, 50mg, which helps get her to sleep and it also diminishes RLS symptoms. But RLS wakes her up at night. We are now thinking about RLS medication and what to ask what had worked for you? DD does not seem to do well on SSRIs. in the past, we had RLS exacerbation that lasted usually less then a week. Normally, her RLS is there constantly but it is mild. any advice would be greatly appreciated. she takes iron daily and had high ferritin levels last time we checked Edited March 11, 2014 by pr40 Link to comment Share on other sites More sharing options...
PowPow Posted March 11, 2014 Report Share Posted March 11, 2014 (edited) sorry- posted about Ferritin and then read your last comment. oops. Edited March 11, 2014 by powpow Link to comment Share on other sites More sharing options...
Rachel Posted March 11, 2014 Report Share Posted March 11, 2014 Have you had her brain neurotranssmitters checked? My son had low levels of serotinon and low levels of doapmine. He also had a sleep study done and had the RLS. My son is unable to take the 5htp. Right now he is taking True Calm and it sees to be slowing his tremors down and he is sleeping through the night without his legs moving. He takes the True Calm at night with 100 mg of Magnesium Citrate. My son was never started on a medication for RLS because our doctors thought it would make other symptoms worse for him. Link to comment Share on other sites More sharing options...
PowPow Posted March 11, 2014 Report Share Posted March 11, 2014 how are the neurotransmitters checked, Rachel? Link to comment Share on other sites More sharing options...
pr40 Posted March 11, 2014 Author Report Share Posted March 11, 2014 Rachel -- dd takes truecalm every day. no help as far as I can see. thanks for your response. we will ask dr to check neurotransmitters. Link to comment Share on other sites More sharing options...
Rachel Posted March 11, 2014 Report Share Posted March 11, 2014 PowPow My son had a neurotransmitters test (urine) done through Pharmasan Labs. His GABA and Epinephrine was low. His Glycine, Glutamate, Histamine, Dopamine, Norepinphrine and Kynurenic acid were all very high. His Sertonin, Taurine, and Pea were all in the normal range. I have been told this is an accurate test. Is there a better test? Rachel Link to comment Share on other sites More sharing options...
3bmom Posted March 12, 2014 Report Share Posted March 12, 2014 This is a link Rachel that you posted under lowering glutamate. It is from a RLS website. Interesting the crossover. http://www.rlcure.com/glutamate2.html Link to comment Share on other sites More sharing options...
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