chubbermommy Posted January 26, 2014 Report Share Posted January 26, 2014 DS is in the midst of a flare and particularly bad today. He was very tired, tics going full force and his vocal tic, which on good days during this flare is usually a little squeal, became a full fledge screech/scream. So I tried giving him 200mg of ibuprofen around 3pm this afternoon. By 7:30pm, he was out of control ticcing like crazy, even worse than ever. I don't know whether to attribute this to his tiredness/anxiety or would ibuprofen affect him this way? Should I try giving him some tomorrow - does it take a few days to have an effect? I am so tired, and desperate. He was doing so well before Christmas holidays. Now everything seems to be unravelling. Link to comment Share on other sites More sharing options...
riffleshell Posted January 26, 2014 Report Share Posted January 26, 2014 Hi, I'm new to this forum and new to PANDAS, but in my limited experience I see results with ibuprofen quickly. If your son was tired and his tics got worse as the day went on, that could be the reason. Being tired is a big trigger for my son. Good luck and get some rest! Link to comment Share on other sites More sharing options...
pr40 Posted January 26, 2014 Report Share Posted January 26, 2014 (edited) we usually give ibuprofen before bed time to help dd relax and it always does help her. we don't give it everyday. you may want to try something else. i suggest you start another post and tell us what he is on, I am sure someone will comment about tics. you may also want to put your ds's history in your signature line so we know it when trying to respond to you. as it is, since ibuprofen does not normally cause tics, it is hard to even start based on the info you provide in this post. Edited January 26, 2014 by pr40 Link to comment Share on other sites More sharing options...
chubbermommy Posted January 26, 2014 Author Report Share Posted January 26, 2014 Thank you. I'll go and change my signature. He's doing better this morning. Link to comment Share on other sites More sharing options...
pr40 Posted January 26, 2014 Report Share Posted January 26, 2014 we were on clonidine and even though it had no negative effects on dd, we stopped it. she was then on clonazepam which had awful effect on her. after that clonazepam experience, we are no longer willing to do any psychiatric medication. I know that clondine is a blood presure medication but it does have psychistric effect and at this point we would not give it to our children. you may want to post about clonidine and see what kind of exp others had. Link to comment Share on other sites More sharing options...
qannie47 Posted January 28, 2014 Report Share Posted January 28, 2014 If the inflammation is on the high side, once dose of motrin may not do it. I would give it every 6 hours for 2 days before I would consider it not to be helpful. And even then I am not sure I would rule it out. Link to comment Share on other sites More sharing options...
JoyBop Posted January 29, 2014 Report Share Posted January 29, 2014 Anyone can have any kind of aside effect with any kind of medication. So although most of us have not seen increased tics, it could cause it in yours. With that said, it could also have been coincidental. Motrin works relatively fast and wears off within 4-6 hours. To really give it a shot you shou give it every 6-8 hours for a day or two and see if it makes a difference. You don't have to give it during sleep bourse, of course. I woukdnt recomend giving it for more than 5-8 days just to help manage a flare. I found it to be such a godsend that I gave it to my son twice a day for 6 months. I found out the hard way that that's not a good idea as it made him anemic. But I would not hesitate to use for the short term for flares. Link to comment Share on other sites More sharing options...
chubbermommy Posted January 29, 2014 Author Report Share Posted January 29, 2014 Thanks for everyone's input. I have given him ibuprofen for the past 2 days (2 doses of 200mg a day) and there has been some improvement. I will continue it for one or two more days and then see what happens. Link to comment Share on other sites More sharing options...
JoyBop Posted January 30, 2014 Report Share Posted January 30, 2014 Remember that a therapeutic dose is every 6-8 hours. If you really want to knock the inflammation down, you have to keep on too if it, otherwise you are just chasing your tail. What I mean is, the medication works for 6 hours (well that's how often you can take it, although I find it works for 4.5 hrs). If you take it as directed you have the chance to keep the inflammation down. If you wait 12 hours I take the med again you have let the inflammation creep back in for an additional 6 hours and now you have to start the process all over. 3x a day is ideal if you are really looking to wack down inflammation. There are many on this forum that find that twice a day is very helpful. You will have to experiment for yourself. Just don't give more than the amount on the bottle for your child's age/weight. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now