IVIG...NYU doc wants to?

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FrikFrak, have you decided what to do?

 

Ophelia, this is a step in the right direction. this is essentially the same diagnosis that my daughter was given- encephalitits (though she has never had a PET scan) and a primary autoimmune disorder . Hers was finally identified, but that is not always the case. so glad to hear that you were not blown off, but understandable why you are so scared. are you just waiting on logistics, (ins, scheduling) now?

Thanks powpow. Dr. C is hoping to identify the cause of auto-immunity with spinal tap....... from there he will approach treatment as needed.

 

Waiting on insurance. They may or may not approve.