qannie47 Posted January 7, 2014 Report Share Posted January 7, 2014 (edited) My ds8 had tonsillectomy 8 days ago. He is doing great. Actually no pain since first day of surgery...He has been wonderful. He is strangely calm, over the top reasonable, and laughing a lot. I was told to expect a flare as a result from the surgery. I expected that to happen rather quickly, within days, since in the past he has had a fast reaction time to flaring with illness or exposure. When do you think a flare would most likely to occur? Or could I just be stuck in a good dream and a flare is not going to happen..... Edited January 7, 2014 by qannie47 Link to comment Share on other sites More sharing options...
JoyBop Posted January 7, 2014 Report Share Posted January 7, 2014 I would think that perhaps he is one of those that is enjoying a miraculous recovery! My dd had no flares after and was in fact 100% for 5 full weeks! Now she has a few flares here and there but they are so much more manageable and shorter in duration. DS flare started about 4 days after and lasted 4 weeks. Every kid is different. My advice would be, do t worry about a flare that is t here now. Enjoy every moment of your your child's good days. I hope it lasts!! Link to comment Share on other sites More sharing options...
airial95 Posted January 7, 2014 Report Share Posted January 7, 2014 We were 100% immediately post-op. It lasted 6 weeks, until he got strep again (but the flares were less severe post op). We never experienced the T&A associated flare. Link to comment Share on other sites More sharing options...
qannie47 Posted January 7, 2014 Author Report Share Posted January 7, 2014 airial95 that is very good to hear.... Link to comment Share on other sites More sharing options...
airial95 Posted January 7, 2014 Report Share Posted January 7, 2014 It was the experience of seeing him 100% post op that pushed us to go for IVIG. 6 weeks after surgery he got strep again. And while the flares were less severe, he was still getting strep A LOT. 6-7x the year post op vs. 10+ per year the 2 years prior. So it was still an improvement, but still. Prior to seeing him "normal" for the first time in 2 years, we were beginning to think that 85% recovered was our "new normal". After he caught strep again and regressed, we wouldn't stand for anything less than 100%. IVIG has done that, but his progress is only temporary - about 7 weeks. So we repeat IVIG every 8 weeks for the time being. He started IVIG in April, and I am happy to say only had 2 strep infections in all of 2013. A HUGE improvement (one was in Feburary, prior to IVIG, and the second was just in December - by far our longest stretch to date!) The flare associated with his infection in December was actually our mildest ever (although it was devastating to us because he had been doing SOOOOO well for so long that any set back seemed severe.) Link to comment Share on other sites More sharing options...
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