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Posted

Does anyone's immunologist use prednisone before or during IVIG to avoid the side effects? I recall reading that Dr B does this? When does he start them, and for how many days?

 

I'm not talking about after- we did that the last two times. We were instructed to wait and see if he got a headache. By the time he started getting a headache, he vomited up the prednisone. And it was horrible.he went from zero to holding his head screaming and vomiting in about 10 minutes. The second IVIG he was waking up in the middle of the night 10 days after IVIG with nausea and migraine( for 9 days prior I was setting alarm to give him Advil at 4:00am!)

Constant advil helped, as did the one remaining steroid pill I had, but I'm hoping to avoid this altogether next time.

 

Thanks for any info!!

Posted

Since he has a history of bad headache with IVIG, can you set up a protocol to administer some prednisone before the headaches start happening. It seems reasonable to me that this approach would make good sense....

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