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Posted

We met a compassionate ENT yesterday who is willing to remove T & A for a PANDAS dx.

 

PM me if you would like his name. He gets a lot of referrals from Dr. L in Bethesda.

Posted

The actual dx is chronic strep infections - doc was fine with labs showing elevated ASO titers over the past 2 years even though my son has atypical strep symptoms.

Posted

Thats great if your insurance co covers it. With our plan we had to prove 5 or more positive cultures in a year or have obstructive sleep apnea. Titres were not accepted. Fortunately we had a sleep study and found that he had sleep apnea. Thank goodness for small miracles!!

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