cara615 Posted November 19, 2013 Report Share Posted November 19, 2013 I got a note home in my son's folder today from the school nurse. She told me that the mom of another PANDAS kid wants to talk to me. She recently went to the conference up north and has tons of info to share. She also has a child in my son's class!!! I was overcome with emotion as I am sure you could imagine. Its her middle child that has PANDAS and is being treated. I called her and we were on the phone for over an hour! She lives around the block. Really, I can't even believe it. I feel so blessed. Teri 1 Link to comment Share on other sites More sharing options...
searching_for_help Posted November 20, 2013 Report Share Posted November 20, 2013 I'm so happy for you! It's wonderful to have others close by that understand the struggles and trials of this disorder. Link to comment Share on other sites More sharing options...
Mommy2MCL Posted November 20, 2013 Report Share Posted November 20, 2013 Just out of curiosity how old is the school your child is in? Our doc mentioned a school that had 4 children with PANDAS in it and there was comprehensive mold testing. I believe he is trying to have the school shut down because of the findings.. It may be of no relevance but it also may shed light on what effects your son also... Link to comment Share on other sites More sharing options...
cara615 Posted November 20, 2013 Author Report Share Posted November 20, 2013 The school is pretty new but I will check. Interesting about mold. My son takes gymnastics and they had a water leak one week in their HVAC and the place smelled moldy. While there, my son started ticcing but once we left, the tics resolved. Link to comment Share on other sites More sharing options...
airial95 Posted November 20, 2013 Report Share Posted November 20, 2013 Awesome!!! Link to comment Share on other sites More sharing options...
Mommy2MCL Posted November 20, 2013 Report Share Posted November 20, 2013 (edited) Yeah... When we had my DD tested for allergies as we were trying to figure this all out. The only thing she was allergic to was a mold mix... Our PANDAS Dr. said he was going to add mold into all of her blood work to see if it could be a contributing factor.... If it comes up positive we will have to have our house checked... It's only 11 years old but we did have Hurricane damage. And I have read other stories on here about mold too... Edited November 20, 2013 by Mommy2MCL Link to comment Share on other sites More sharing options...
3bmom Posted November 20, 2013 Report Share Posted November 20, 2013 Ours started with mold, Stachy. I usually don't mention it because it is more controversial than PANDAS. The windows were not caulked properly. The spring before we had a comprehensive hearing test and DS was fine. Following January they told me he failed the school test. I ignored it figuring noisy kids and not the caliber of what I had previously done. First PANDAS episode was a few weeks later and we found both tubes in his ears had collapsed! No signs of mold were visible but after removal our Asthma was gone! I think it is all layers creating dysfunction in the immune system. Link to comment Share on other sites More sharing options...
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