Mommy2MCL Posted November 10, 2013 Report Share Posted November 10, 2013 On Thursday we saw the PANDAS DR. and go the ball rolling in diagnosing what we are dealing with. Through our base story he prescribed Augmentin to our daughter. 2x 500MG with Florastor... We started her 1st dose on Thursday evening. Tonight we were out late and got home to take her dose and she melted down bc the florastor smelled... And she yelled at me the way she has never yelled before... My thought is maybe she was just overly tired from a busy day... or does it have something to do with starting Augmentin. Thoughts? Thank you, Megan Link to comment Share on other sites More sharing options...
LNN Posted November 10, 2013 Report Share Posted November 10, 2013 My first suspicion would be the florastor. My DS cannot handle Saccharomyces-boulardii at all (the yeast that's in florastor). It makes him very angry. So I'd suggest stopping that and using a different probiotic. (Theralac, CP-1 and Kirkman's Bifido Complex are all high in Bifido bacterias, which is what mother's milk contains). Unlike Florastor, these are sensitive to abx and need to be taken 2-3 hrs away from abx, preferably at bedtime or a time when stomach acids are low (i.e. away from meals). It's possible it could be the augmentin and that it's killing an infection, giving you a herx. But the rage makes me suspect the florastor, especially since she was complaining about the smell of it. Sometimes they have almost a 6th sense of what to avoid. If you stop the florastor and still have issues after a week or so, then consider the augmentin, or consider yeast. Yeast infections can trigger anger as well as age-inappropriate silliness and foggy thinking. Some docs use nystatin on a regular basis. So something to add to your list of questions for the next time you consult with the dr. We've used odorless garlic capsules as a daily yeast preventer as well. Link to comment Share on other sites More sharing options...
qannie47 Posted November 10, 2013 Report Share Posted November 10, 2013 I would stay the course for a week at least. With my ds, when I made changes too quickly, it ended up adding more confusion to the situation. I learned that when I gave new approaches more time, I would see my ds bounce back and fourth between troubling behaviors and great days. I think that is the hardest part with this disorder....the waxing/waning. Link to comment Share on other sites More sharing options...
Mayzoo Posted November 10, 2013 Report Share Posted November 10, 2013 I would see how it goes for a week also. One "episode" is not enough with my kiddo to make changes since many, many things affect the onset of a short "episode" like you described. I look for trends over a few days rather than an isolated incident before I make changes. If you have not already started a DETAILED log of changes in meds, supps, behaviours, improvements, episodes, etc...... start one now so you can tell what is helping, what is neutral, and what is detrimental. Keep handwriting samples over time in there too. I would consider adding a traditional probiotic in a week or so as well (if everything is going smoothly). It would need to be taken 2 hours apart from the augmentin to protect the beneficial bacteria. Link to comment Share on other sites More sharing options...
Mommy2MCL Posted November 10, 2013 Author Report Share Posted November 10, 2013 Thanks Ladies!!! I do have a log I have started and it has been very helpful. I will add this on and see. Last night we mixed it in cranberry juice and you could really smell it and before in orange juice... Back in OJ this morning and the smell and problem was gone, thankfully. She had never per say had that type of episode last night... But we were on Disney on Ice and got home late after a busy day... Finger crossed it was a coincidence. Link to comment Share on other sites More sharing options...
pr40 Posted November 10, 2013 Report Share Posted November 10, 2013 (edited) how about sugar intake? my second guess is that if it is not yeast, it could be sugar -- you went to a disney show which, I assume, could be the occassion to eat some if not a lot of sugar. Edited November 10, 2013 by pr40 Link to comment Share on other sites More sharing options...
Mommy2MCL Posted November 10, 2013 Author Report Share Posted November 10, 2013 Yes I thought about that too.... I will keep an active eye on it and hopefully it is just a coincidence... This morning she has been perfect and in a fantastic mood... Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now