Dr K in NE OH?

[kc35]

Does anyone have any experience with Dr. K near Cleveland Ohio? I made an appt with him next week to determine whether my DD6 has PANS/PANDAS. Her OCD symptoms are increasing daily. I got an appt with him sooner than Dr. L near Columbus and he is closer to me. A few of the people on here mentioned that they know of others who have worked with him. Does anyone know what blood tests he does for diagnosis or treatment protocol? I saw a link someone sent me that stated he treated a boy who was originally diagnosed with TS but then Dr. K determined he had PANS/PANDAS and was treating him with IVIG. Any information is appreciated. PM if you like. Thank you.

[PowPow]

I think that person may have been referring to Dr K near Chicago. He treats PANDAS/PANS with IVIG, frequently.

[nicklemama]

Dr K, Ohio, has been mentored by Dr K in Chicago. I know several who see him. He does IVIG, too.

[kc35]

Thanks Nickelmama. That makes me feel better that Dr J. K. in OH corresponds with one of the big PANS/PANDAS Drs. I really need a Dr who really understands this to determine whether this is what is happening to my DD6. Things have gotten really bad in the last week - major OCD where she can't walk anymore without backtracking, counting, repeatedly touching stuff etc. I feel like I'm in "Saving Sammy".

 

Do you know whether he does Igenex and Moleculara tests as well? Thanks.

[nicklemama]

I have no idea what testing he does. There is an Ohio PANDAS Facebook group that would know more. I'm not sure if you can find them on Facebook , though, because it's probably private. I'll do some asking around if you'd like to join them.

[WorriedDADNMOM]

I would say that Dr L whom you might be talking about is our go to person for our kiddos. He is in Gahanna,OH. But I am not sure we are talking same doc.

 

PM me if you need info.

[lfran]

My ds did that backtracking thing once. Turns out he was spelling sentences in his head with each step was one letter as he walked and then the backtracking was either the period or the space. I think the space. He had just had a glutathione push and was on nac at the time. Not sure whether either of those was responsible but that behavior eventually went away. Replaced by others, but not as problematic.