putting together the piece Posted August 27, 2013 Report Share Posted August 27, 2013 Hello Everyone, After years of trying everything else we have finally reached the point where IVIG is now looking like the best option. Our current doc agrees but he doesn't do IVIG. Based on your experiance whom should I contact? I'd appreciate any feed back that you think is important. Thanks Link to comment Share on other sites More sharing options...
nicklemama Posted August 27, 2013 Report Share Posted August 27, 2013 Can he order it and have it done with an infusion company? Link to comment Share on other sites More sharing options...
mdmom Posted August 28, 2013 Report Share Posted August 28, 2013 Our PANS/Lyme doc orders the IVIG and and an infusion company sends a nurse to our home to administer it. If you could get the doc to order IVIG, then this would be a good option for you. Link to comment Share on other sites More sharing options...
putting together the piece Posted August 28, 2013 Author Report Share Posted August 28, 2013 Can he order it and have it done with an infusion company? I don't know. He usually sends patients to Latimer but he said many were complaining about her administrative staff. I will check today but I got the feeling that writing the IVIG plan was not something he does. Link to comment Share on other sites More sharing options...
putting together the piece Posted August 28, 2013 Author Report Share Posted August 28, 2013 Our PANS/Lyme doc orders the IVIG and and an infusion company sends a nurse to our home to administer it. If you could get the doc to order IVIG, then this would be a good option for you. What state is your Pans/Lyme doc in? Link to comment Share on other sites More sharing options...
mdmom Posted August 28, 2013 Report Share Posted August 28, 2013 Washington, D.C. Link to comment Share on other sites More sharing options...
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