tpotter Posted August 19, 2013 Report Share Posted August 19, 2013 BTW, I just want to clarify that according to the NIMH, Lyme is a possible trigger for PANS, as are all infections, metabolic, and environmental triggers (Dr. Swedo does mention Lyme in her list of possible triggers.) T.Anna, I am glad that you're getting such good help from Dr. S. and Maimonodes. Link to comment Share on other sites More sharing options...
PowPow Posted August 19, 2013 Report Share Posted August 19, 2013 Not that anyone asked, but my child's depression improves quite a bit with immune tx and steroids. LaurenK, does any imaging ever show any changes in your brain? Link to comment Share on other sites More sharing options...
T_Anna Posted August 19, 2013 Report Share Posted August 19, 2013 I'm on the fence regarding the MRI, if we pursue that testing, we may do it through a different doctor. Right now I need to focus on thyroid. After thyroid is answered and we decide if we are doing another IVIG this week, then I can focus on other things. Oh and we decided to proceed with a bar mitzvah for non-pandas son in 2 weeks (just started planning), so there is a lot going on. T.Anna Link to comment Share on other sites More sharing options...
lfran Posted August 21, 2013 Report Share Posted August 21, 2013 Two weeks to plan a bar mitzvah! Wow! Mazel tov! Link to comment Share on other sites More sharing options...
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