T_Anna Posted July 16, 2013 Report Share Posted July 16, 2013 So DS15 was in a great mood after being stuck in the bathroom for 15 hours last night. Lately he has had a sense of humor and been a pleasure to be with. He is still stuck with severe OCD, but he seems more himself. The downside is that he has been ticcing and having chereoform movements almost non stop. Why is there more ticcing stuff all of a sudden? We are working on hopefully getting PEX for next week since DS has been non functional since January. What is going on?? TIA, T.Anna Link to comment Share on other sites More sharing options...
oivay Posted July 16, 2013 Report Share Posted July 16, 2013 The triggers for my daughter were pretty much as follows, but always included a positive rapid strep test and /or culture. Titers never rose. 1st time....strep. (treated with Zithromax) took several weeks...maybe 6 to resolve. 2nd time....strep, also had received meningitis vaccine about 3 days before major episode of chorea. first treated with Suprax, then clindamycin and massive steroid burst. improvement within 48 hours. faded prednisone over the course of about 5 or 6 weeks. 3rd time post tonsillectomy after stopping abx 10 days after surgery....treated with biaxin (had to stop due to gastro issues, then clindamycin and Medrol.) significant improvement, but never fully resolved. did pex about 2 mos. later. Excellent results from PEX. She was diagnosed with both Pandas and Sydenham's There were a few other bouts in between, but these were the major ones that left her unable to walk etc. Link to comment Share on other sites More sharing options...
3boysmom Posted July 16, 2013 Report Share Posted July 16, 2013 (edited) Have you checked for yeast? Our son had toxic levels of Candida Glabrada. Our 3rd major flare came with terrible tics, couldn't put 2 words together - cause was Coxsackie. Our 1st flare however had the body movements after the sudden dysfunction (before we knew about PANDAS). And this led to sydenhyms cohrea. The Valtrex and now acyclovir is slowly improving the tics. I DO know about the "long bathroom" issues-so sad. I hate that one. And the new one for our DS13 is hard for me to know how to advise. He asks "how do I know if I am bisexual or it's OCD?" With all the different OCD he's had over these last 3 years, how do you discriminate and councel? Edited July 16, 2013 by 3boysmom Link to comment Share on other sites More sharing options...
T_Anna Posted July 16, 2013 Author Report Share Posted July 16, 2013 I think he may have a yeast issue, he has in the past. Will address it with the doctor this week. T.Anna Link to comment Share on other sites More sharing options...
3boysmom Posted July 16, 2013 Report Share Posted July 16, 2013 We are also going to retest for yeast this week. Link to comment Share on other sites More sharing options...
rowingmom Posted July 17, 2013 Report Share Posted July 17, 2013 Is your son still on abx? He may be feeling and acting better because of a decrease in bacterial load, but the increased ticcing could be a result of die-off. We find increased ticcing to be the result of toxin overload. Link to comment Share on other sites More sharing options...
T_Anna Posted July 17, 2013 Author Report Share Posted July 17, 2013 Yes, he's still on abx. Die off would definitely be a better reason than yeast! Thanks for the hope. T.Anna Link to comment Share on other sites More sharing options...
rowingmom Posted July 17, 2013 Report Share Posted July 17, 2013 I would still check for yeast though, if only to be able to rule it out. Link to comment Share on other sites More sharing options...
T_Anna Posted July 17, 2013 Author Report Share Posted July 17, 2013 (edited) He had been taken off Diflucan three+ weeks ago, so I added it back as a test to see if it helps. What is interesting is that I haven't seen the finger tic since the choreaform movements got worse. T.Anna Edited July 17, 2013 by T.Anna Link to comment Share on other sites More sharing options...
T_Anna Posted July 23, 2013 Author Report Share Posted July 23, 2013 It is now almost a week since I added the Diflucan back and things are much improved. The ticcing is less often, and he is in a much better mood. Thanks everyone. T.Anna Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now