T_Anna Posted July 1, 2013 Report Share Posted July 1, 2013 Email Dr.T, ask him if he ran the test. He can test it and does sometimes (rarely). You can even just call Silky and ask her to have him answer your email. Dr. Schulman is away until July 16, so that may not be helpful in the short term (whole office/appointment closed). But you can ask Dr.T is he thinks she'd be able to help. He has also sent people to Najjar, but they have had mixed results with his assistant. T.anna DS 15 Link to comment Share on other sites More sharing options...
trintiybella Posted July 1, 2013 Author Report Share Posted July 1, 2013 Is this a test that traditional doctors would be willing to try. I am trying to get into Dr. Najjar in NYU again. Need help quickly Link to comment Share on other sites More sharing options...
T_Anna Posted July 1, 2013 Report Share Posted July 1, 2013 Dr.T can order the test, I believe it can be done with a home blood draw too. T.Anna Link to comment Share on other sites More sharing options...
trintiybella Posted July 1, 2013 Author Report Share Posted July 1, 2013 Just spoke to Dr. T. (PANDAS) He wants us in 8am tomorrow for more blood work. He said he needs to check for viruses and that Anti-NMDA thing. He said the Anti-NMDA test is usually a spinal tap but he can do blood work too. Not sure if I have that right. He said he will do more in depth testing than NYU (Najjar) I guess I will start with him. nicklemama and cobbiemommy 2 Link to comment Share on other sites More sharing options...
mama2alex Posted July 2, 2013 Report Share Posted July 2, 2013 Regarding sleep, have you checked her neurotransmitter levels? I believe its a blood test or urine test - can't remember. Some of these play a role in sleep and there are supplements that can help correct the levels. Link to comment Share on other sites More sharing options...
rowingmom Posted July 3, 2013 Report Share Posted July 3, 2013 Good. Glad you are going to see Dr T. Just please don't dismiss her bartonella infection, it is probably an important piece of the puzzle. Link to comment Share on other sites More sharing options...
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