Did you do IVIG for Bartonella or Lyme?

[trintiybella]

Have many people done IVIG for Bart and Lyme???? Any success?

[rowingmom]

We haven't tried this. I would think the IVIG might help with PANS symptoms for a while, but would not tackle the infections. Because the infections remain, more antibodies will be produced and symptoms will eventually return.

[sf_mom]

Our older son was helped by hdIVIG (when we thought PANDAS only). However, like Rowingmom states I believe symptoms would have eventually resurfaced until infections were addressed properly. When we found Lyme our older son had blood in his stool and he was six months post his last hdIVIG. I feel the parasite in his gut was the potential tipping point and he would have eventually regressed because his body was unable to rid himself of bug due to chronic Lyme. Since treating Lyme he has not required additional hdIVIG treatments. We have not pursued hdIVIG for our younger twins even though they showed immune deficiencies both in IgG 1, 3s (1 and 3 is your ability to fight bacterial infection), total serum deficiencies plus 10 of 13 strep pneumo serotype deficiencies. Those deficiencies have slowly turned around last time we checked inclusive of strep pneumo's.

 

My friends son who was also treated for PANDAS about one year but later discovered Lyme had temporary benefits with hdIVIG for about 8 weeks each treatment. He had three treatments about 12 weeks a part. He has not had a hdIVIG in over two years. Although greatly improved with Lyme treatment he still has some severe learning disabilities and is loaded with heavy metals which they still need to address. My friend is considering the possibility of another hdIVIG treatment just to give him a boost or reprieve even if it is only temporary.

 

Our LLMD does recommend IVIG on occasion even though he does not administer treatments (I think it is typically low dose monthly infusions). I understand even those results are mixed. For some it brings tremendous temporary relief. But similarly, I am having a wonderful response to hd IV Vitamin C and IV glutatione but know it is often too inflammatory for others. They just can not tolerate these types of treatments.

 

I am sorry but I think some of these treatments are truly trail and error as the outcome is individual when you are dealing with chronic infections.

[frikfrak]

Hello,

 

I am new here and am very interested in the IVIG treatment. Can any doctor do this? What is it exactly?

My son (22) has lyme, RMSF and babesia but nothing is working. I also suspect PANDAS, his ASO titers are very high.

 

Is there a blood test for pandas? He has all the symptoms.

 

any help is appreciated, thank you

His Mom