NIMH Study - for all the New Folks!

[airial95]

There have been quite a few new families on here the last couple of weeks, and it might be helpful to remind everyone about the IVIG study currently being done by NIMH.

 

Last I heard (yesterday), they were still looking for 2-3 families to participate so they can complete the research. They are looking for new onset cases, and if your child qualifies, they will get IVIG treatment as part of the study. (They may be in the placebo group to start, but if they are given the placebo - they will be given IVIG as a follow up.)

 

This is the research that many are hoping will open up the doors for insurance carriers to cover IVIG for PANDAS/PANS.

 

If you're a new onset family - it's may be something you're interested in checking out.

 

http://intramural.nimh.nih.gov/pdn/web.htm

 

http://clinicaltrials.gov/ct2/show/NCT01281969

 

(Thanks peglem for the reminder!!)

 

[Crunchfly]

Thank you for posting this!

My ds wouldn't qualify because he currently does not meet the OCD criteria, but hopefully other new families can join.

[EAMom]

bump