Azithromycin and dosage

[lsad765]

Hi all --

 

Based on your experience, how long after first starting abx for PANDAS should you switch to a prophylactic dose?

 

I'd like my DD to stay on a full-strength dose for awhile, since I think we're finally seeing some good results!

 

My DD6 was diagnosed by Dr. T 1.5 months ago. She started on Cefdnir immediately -- 250mg 2 x day. She is about 40 lbs. After 3 weeks, she got strep while on Cefdnir and switched to Azith for 5 days (not sure the dose, prescribed by her ped after positive strep), which cleared the strep. Then she went back on the Cefdnir. Five days ago, she stared on Azith again at 200 mg 1 x day, and two days ago, she started on Azith 200mg 2x day. Since starting on the Azith, she has been doing great, and especially since the 2 x a day Azith (only a couple days, but great results so far)!

 

For those of you familiar with Dr. T, do you think he'll give me a longer dose, or will he want to switch right to a prophylactic dose? Last week, his assistant was telling me adamantly that he would only give a prophylactic dose. He was literally on his way out the door to tend to his ill mother, who sadly passed away this mornig, when he wrote me the full-strength prescription for Azith, but just for 10 days.

 

Given that Dr. T has a lot going on right now, and given that I don't have anyone else to write another prescription (ped definitely will not), I'd like to call him telling him exactly what I would like. Maybe a month? Two months? More? So long as it is considered safe, I'd like to be aggressive with the Azith, assuming DD continues to do well on it. What do you suggest?

 

Thanks in advance --

[LindaMW]

We have been experimenting with Azithromycin and saw a big improvement. The OCD which has been mild this time, has gone completely. The rages come off and on but again, not as bad as before. He has been taking it full strength since the beginning of January and about the third week of February we went to prophylactic dose.

It's been about two weeks and I just started seeing some OCD come back and he had a really bad rage episode last night. Is it because we cut back, don't know, but it is the only change and seems that way to me.

 

I am sure others can give their experience also. This was the first time in 1 1/2 years that we tried Zith. Saw improvement in the past with Keflex and Augmentin but this year had to move to Zith, the other two did nothing. Plus we are still waiting for blood tests results so I don't know what we could be dealing with.

[michiganpandas]

Dr. T prescribed us azithromycin 2x per week. I ended up giving it 3x's per week for 2 months and then cut down to 2 x.