Tattoomom Posted January 3, 2013 Report Share Posted January 3, 2013 Labs done about 3 weeks after a strep throat infection, but in hindsight, about 9 months after original PANDAS symptoms appeared. ALL her labs were normal, but so were my other PANDAS/PANS children, even though they clearly respond to antibiotics. CBC- normal M pnemoniae IgG's and Granulocytes- normal M pnemoniae IgM- normal Anti-DNase- normal HSV, IgM- normal Streptozyme- normal Antistreptolysin O Ab- normal She doesn't respond to the antibiotics as well. There's still a lot of underlying symptoms with her (anxiety/ocd even on Zoloft & Tenex) and screaming/rages/foggy brain. What about the IgG subclasses? Any other lab work you can recommend? (although I have no idea how we'd get her to do it... she will FREAK!) I'm ready to push for steroids, we've never tried that. I'm wracking my brain to think of things to try. What about 2 abx at once? She's only on Augmentin right now. Link to comment Share on other sites More sharing options...
Hayley Posted January 3, 2013 Report Share Posted January 3, 2013 Viral stuff: Coxsackie, EBV? Lyme? Link to comment Share on other sites More sharing options...
pr40 Posted January 3, 2013 Report Share Posted January 3, 2013 (edited) both of our kids have normal inflammation labs (after 2 months on abx), just like your daughter. when we checked their vitamin levels, we found b12, b7, and d to be low. both have gene mutations on MTHFR. ds4 responded well to steroids, less to abx. dd9 responded well to abx. both are also on vitamin supplements. Edited January 3, 2013 by pr40 Link to comment Share on other sites More sharing options...
Hopeny Posted January 3, 2013 Report Share Posted January 3, 2013 Lyme caused foggy brain for my dd which has cleared up well after 7/8 months of abx Link to comment Share on other sites More sharing options...
mama2alex Posted January 4, 2013 Report Share Posted January 4, 2013 I would test for Lyme, Bartonella and Babesia through Igenex. Also, nasal staph infection - this was a big one for us that only the LLMD caught. Link to comment Share on other sites More sharing options...
mdmom Posted January 4, 2013 Report Share Posted January 4, 2013 Something to keep in mind is that it takes a functional immune system to make antibodies to pathogens. Most tests for infections are antibody-based. My son rarely has anything positive in his labs for infections. We found out last year that he has a primary immune deficiency. It might be a good idea to look at her immune function and running the IGG, IGA, IGM and IGG subclass tests might give you some clues. My son seems to initially fight infections, but doesn't fully clear them. So he is a walking petri dish of low-grade infections. He has responded to aggressive treatment with anitfungals, antibiotics and antivirals. The antiviral (Valtrex) made the most noticeable, almost overnight difference in him. Link to comment Share on other sites More sharing options...
cobbiemommy Posted January 5, 2013 Report Share Posted January 5, 2013 C3A, and C4A which are tests for markers of inflammation. I would definitely test for the viral items, especially coxsackie. Good luck. Cobbie Link to comment Share on other sites More sharing options...
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