T_Anna Posted January 3, 2013 Report Share Posted January 3, 2013 Ok, so last night didn't go exceptionally well. DS got stuck with the OCD in the bathroom all night. Does anyone have any experience with whether caffeine makes OCD worse? DS (14.5) loves Earl Gray tea and had a cup at 7pm and 10:30pm. I know it probably doesn't help, but has anyone cut out caffeine and seen improvement? TIA, T.Anna Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted January 3, 2013 Report Share Posted January 3, 2013 Sorry, no direct experience, but it does sort of fit a pattern, doesn't it? I mean, if caffeine revs you up, and too much of it can make some people edgy with or without PANDAS/PANS/OCD, it stands to reason it could impact your DS. My DH isn't clinically dxed with OCD, but he definitely has some characteristics, along with some propensity toward depression. We've found we really have to limit his caffeine intake for his best health. So, his pop is caffeine-free, his coffee is 1/2 and 1/2, and his tea, when he has it, is non-caffeine, as well. I think I'd just switch out the tea bags in the pantry for decaffeinated in the same flavors. I don't think your DS will taste the difference at all, and it might help diminish the "edge," especially at night-time. Good luck! Link to comment Share on other sites More sharing options...
hulaotter Posted January 3, 2013 Report Share Posted January 3, 2013 Ok, so last night didn't go exceptionally well. DS got stuck with the OCD in the bathroom all night. Does anyone have any experience with whether caffeine makes OCD worse? DS (14.5) loves Earl Gray tea and had a cup at 7pm and 10:30pm. I know it probably doesn't help, but has anyone cut out caffeine and seen improvement? TIA, T.Anna Caffeine is BAD news for our PANDAS daughter, it might as well be laced with Myco-P or Strep. We have cut it entirely and it makes a big difference. I think they make a decaf Earl Grey, you might try that. Link to comment Share on other sites More sharing options...
T_Anna Posted January 3, 2013 Author Report Share Posted January 3, 2013 Thanks. Great idea, I just ordered some from Amazon. Now if I could only figure out how to get him out of the bathroom : / T.Anna Link to comment Share on other sites More sharing options...
Missmom Posted January 3, 2013 Report Share Posted January 3, 2013 Yes, my son stays away from all caffeine. He kind of feels it when he eats chocolate or drinks soft drinks with caffeine. It is not too hard for him to avoid. He loves tea too, but we just give him decaf. and he can not tell the difference. Link to comment Share on other sites More sharing options...
T_Anna Posted January 3, 2013 Author Report Share Posted January 3, 2013 Just found a site that says that taking Luvox with caffeine can heighten the effect of the caffeine (not what we needed ). From the site http://www.crazymeds.us/pmwiki/pmwiki.php/Meds/Luvox "Mixing caffeine and Luvox (fluvoxamine) can be intensely unpleasant. Your one cup of joe will suddenly become like five cups, and the effects will last six times as long. The results indicate that intake of caffeine during fluvoxamine treatment may lead to caffeine intoxication. —A fluvoxamine-caffeine interaction study. This effect was confirmed by pharmacokinetic geek lab tests And it doesn’t matter if you’re a normal or poor metabolizer of CYP1A2, or if you’re taking just 10mg of fluvoxamine..." Well, at least this is confirmed, just cost us another day of school though T.Anna DS - 14.5 dx 11/17/12 Link to comment Share on other sites More sharing options...
Pandasphilly Posted January 3, 2013 Report Share Posted January 3, 2013 Caffeine also elevates cortisol. I know for my ds10 when his cortisol peaks his ocd is at its worst Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now