LISTEN HERE!

[beeskneesmommy]

Listen to me, all parents! I have been reading several messages of despair during the holidays on various forums. The shooting last Friday shook us all up and added to the worries of the world. I am here to say that your child can and will get better! My son had his 1st Strep at 14 WEEKS. He has lived with PANDAS/PITAND for well over half his life and fell to pieces in September 2010. He literally went non-verbal, rocking, stimming, with chorea of the upper body, severe facial contortionas verbal tics and OCD. He was lost. It took time and good docs, and treatment, but he is found. He is here, whole, happy, healthy, relatively cheeky and obnoxious and sweet as any 6 year old boy can be! 3 years ago there was very little info out there. Now the medical community is starting to catch up and the specialists are gaining ground. Most of all, we parents are pushing forward, striving and CHANGING the way that the country and the medical community looks at this, and related health issues. This is a disorder from which your children can recover! We will have to be vigilant throughout our son's childhood and adloescence, and perhaps tweak things with IVig occasionally or abx changes, but he is going to be OK. Please do not lose hope and keep fighting the good fight! It will pay off. Happy holidays and love and peace and caring from my family to yours. -Kath

[lulu4]

Thank you! Really needed to hear some encouragement today. Thanks for posting. All the best to you and yours through the holidays and beyond!

[MamaOnAMission]

Yes. I needed to hear that too. Thanks!!!

[DsMom]

Listen to me, all parents! I have been reading several messages of despair during the holidays on various forums. The shooting last Friday shook us all up and added to the worries of the world. I am here to say that your child can and will get better! My son had his 1st Strep at 14 WEEKS. He has lived with PANDAS/PITAND for well over half his life and fell to pieces in September 2010. He literally went non-verbal, rocking, stimming, with chorea of the upper body, severe facial contortionas verbal tics and OCD. He was lost. It took time and good docs, and treatment, but he is found. He is here, whole, happy, healthy, relatively cheeky and obnoxious and sweet as any 6 year old boy can be! 3 years ago there was very little info out there. Now the medical community is starting to catch up and the specialists are gaining ground. Most of all, we parents are pushing forward, striving and CHANGING the way that the country and the medical community looks at this, and related health issues. This is a disorder from which your children can recover! We will have to be vigilant throughout our son's childhood and adloescence, and perhaps tweak things with IVig occasionally or abx changes, but he is going to be OK. Please do not lose hope and keep fighting the good fight! It will pay off. Happy holidays and love and peace and caring from my family to yours. -Kath

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Thank you as well, your positive words are very welcome as we are struggling still, just one day at a time. You have offered some wonderful advice to me in my past posts, it's been very appreciated. Warm wishes for a good end of 2012,

Erin

[dut]

Thank you.