New Test Results

[JuliaFaith]

While waiting for test results from ND, went back to PANDAS dr. to see if she had any ideas since last big flair.

 

Just got blood work back from both doctors today after latest flair and am so disappointed.

 

HHV6 is HIGH (already done Valtrex and Valcyte)

EBV is HIGH (it has shown as prior infection in the past but not active)

Both of these viruses are activated. Son was 1 week into virus when bloodwork done. Would that have contributed to these at all?

 

Vit. D is low again so cannot do GcMAF yet.

 

Thyroid is all over the place: Sept. 5.55/Oct. 2.9/Nov. 3.74 (did increase meds after Sept. so not sure why it is going up/down)

 

Did get a little good news tho about MTHFR being negative and mico p testing as negative.

 

Also, starting neurofeedback in a few weeks which is supposed to help, over time, with a lot of residual PANS things (depression, thinking, sleeping etc.). Dr. said it works slowly, so that the further you get in treatment the better you feel. He will be doing this once a week. Have read that it takes about 18-20 visits for full treatment.

 

Any ideas on these would be greatly appreciated. You all are great!