Pandasphilly Posted October 28, 2012 Report Share Posted October 28, 2012 Hi Everyone, I am new to the group, from Philadelphia, and confess to being another lurker. I was actually having posting difficulty. Thank goodness for all of you brilliant moms who have paved the path and posted it to share. I am heading to Georgetown for PEX next week with ds10. Does anyone know if it's safe to give 5 day prednisone burst a week before pex? Or know of any reason not to? We are 4 months post ivig (Dr.T) with only slight improvement. I can't survive another day of his raging. I especially can't imagine surviving hurricane Sandy without steroids. I recall steroids were helpful with ivig for different reasons. Usually a hurricane would be a breeze compared to what we live with daily But a hurricane with a PANDAS kid is a whole 'nother story!! Link to comment Share on other sites More sharing options...
Missmom Posted October 28, 2012 Report Share Posted October 28, 2012 Sorry, I don't have an answer to your question just wanted to say welcome to the board. Link to comment Share on other sites More sharing options...
beeskneesmommy Posted October 28, 2012 Report Share Posted October 28, 2012 I would definitely call Dr. T and ask him prior to administering steroids... Link to comment Share on other sites More sharing options...
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