kos_mom Posted October 15, 2012 Report Share Posted October 15, 2012 http://fightingpandas1.blogspot.com/2012/10/elizabeth-wray-scandal-protested-at.html#!/2012/10/elizabeth-wray-scandal-protested-at.html Link to comment Share on other sites More sharing options...
Hayley Posted October 15, 2012 Report Share Posted October 15, 2012 Is anyone else baffled by the fact that this isn't getting any media attention? I really don't understand it..... Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted October 15, 2012 Report Share Posted October 15, 2012 The only thing I can figure is that they (the media) can't get an angle on it because BCH will refuse to talk about it based on HIPPA, and they've put a gag order on the other key players (the parents and the attorney). Perhaps if the grandfather offered himself up to the media directly, then there'd be some traction?!?! Link to comment Share on other sites More sharing options...
kos_mom Posted October 15, 2012 Author Report Share Posted October 15, 2012 There was this story in an online Boston journal: http://bostinno.com/2012/10/12/elizabeth-wray-boston-childrens-hopsital-custody-battle-pandas-pans-disease/ The reporter clearly did speak to the grandfather. But he wasn't the one who lost custody; reporters are shut out of talking to the direct sources by the gag order and HIPPA. But still, one would hope someone would dig up the gag order, which should be publicly available as it doesn't involve a minor like the custody order does. That at least be one bit of hard documentation that could help a reporter do a story without resorting to hearsay, which is all the press would have to go on at this point. Link to comment Share on other sites More sharing options...
mkur Posted October 16, 2012 Report Share Posted October 16, 2012 These stories just break my heart. Link to comment Share on other sites More sharing options...
3boysmom Posted October 18, 2012 Report Share Posted October 18, 2012 What's the latest news? When is the court date? Link to comment Share on other sites More sharing options...
kos_mom Posted October 18, 2012 Author Report Share Posted October 18, 2012 On October 2, it was agreed to reconvene October 23. Court dates can change of course. Link to comment Share on other sites More sharing options...
bulldog24 Posted October 18, 2012 Report Share Posted October 18, 2012 Havent heard a peep Link to comment Share on other sites More sharing options...
kos_mom Posted October 18, 2012 Author Report Share Posted October 18, 2012 Science Based Medicine posted an artile on the EW situation called "A Pandas Story." It is worth reading if only to hear the point of view of a self-described skeptical doctor, a Yale neurologist, who appears to have heretofore known nothing about Pandas. That said, it doesn't project a view most anyone on this board would agree with. http://www.sciencebasedmedicine.org/index.php/a-pandas-story/#more-23161 Link to comment Share on other sites More sharing options...
3boysmom Posted October 21, 2012 Report Share Posted October 21, 2012 Science Based Medicine posted an artile on the EW situation called "A Pandas Story." It is worth reading if only to hear the point of view of a self-described skeptical doctor, a Yale neurologist, who appears to have heretofore known nothing about Pandas. That said, it doesn't project a view most anyone on this board would agree with. http://www.sciencebasedmedicine.org/index.php/a-pandas-story/#more-23161 That article makes me want to respond, but can't waist my energy with them! Ugh Link to comment Share on other sites More sharing options...
kos_mom Posted October 21, 2012 Author Report Share Posted October 21, 2012 i tried but had problems getting registered on the site. He chose the weirdest assortment of Pandas article as cites! At least one of the commenters put up the nimh article. Link to comment Share on other sites More sharing options...
EAMom Posted October 22, 2012 Report Share Posted October 22, 2012 (edited) That article makes me want to respond, but can't waist my energy with them! Ugh My thoughts exactly! Edited October 22, 2012 by EAMom Link to comment Share on other sites More sharing options...
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