Another story posted on EW situation

[kos_mom]

http://fightingpandas1.blogspot.com/2012/10/elizabeth-wray-scandal-protested-at.html#!/2012/10/elizabeth-wray-scandal-protested-at.html

[Hayley]

Is anyone else baffled by the fact that this isn't getting any media attention? I really don't understand it.....

[MomWithOCDSon]

The only thing I can figure is that they (the media) can't get an angle on it because BCH will refuse to talk about it based on HIPPA, and they've put a gag order on the other key players (the parents and the attorney). Perhaps if the grandfather offered himself up to the media directly, then there'd be some traction?!?!

[kos_mom]

There was this story in an online Boston journal:

 

http://bostinno.com/2012/10/12/elizabeth-wray-boston-childrens-hopsital-custody-battle-pandas-pans-disease/

 

The reporter clearly did speak to the grandfather. But he wasn't the one who lost custody; reporters are shut out of talking to the direct sources by the gag order and HIPPA.

 

But still, one would hope someone would dig up the gag order, which should be publicly available as it doesn't involve a minor like the custody order does. That at least be one bit of hard documentation that could help a reporter do a story without resorting to hearsay, which is all the press would have to go on at this point.

[mkur]

These stories just break my heart.

[3boysmom]

What's the latest news? When is the court date?

[kos_mom]

On October 2, it was agreed to reconvene October 23. Court dates can change of course.

[bulldog24]

Havent heard a peep

[kos_mom]

Science Based Medicine posted an artile on the EW situation called "A Pandas Story." It is worth reading if only to hear the point of view of a

self-described skeptical doctor, a Yale neurologist, who appears to have heretofore known nothing about Pandas. That said, it doesn't project a view most anyone on this board would agree with.

 

http://www.sciencebasedmedicine.org/index.php/a-pandas-story/#more-23161

[3boysmom]

Science Based Medicine posted an artile on the EW situation called "A Pandas Story." It is worth reading if only to hear the point of view of a

self-described skeptical doctor, a Yale neurologist, who appears to have heretofore known nothing about Pandas. That said, it doesn't project a view most anyone on this board would agree with.

 

http://www.sciencebasedmedicine.org/index.php/a-pandas-story/#more-23161

 

 

 

 

That article makes me want to respond, but can't waist my energy with them! Ugh

[kos_mom]

i tried but had problems getting registered on the site. He chose the weirdest assortment of Pandas article as cites! At least one of the commenters put up the nimh article.

[EAMom]

 

 

 

 

That article makes me want to respond, but can't waist my energy with them! Ugh

 

My thoughts exactly!

Edited October 22, 2012 by EAMom