JuliaFaith Posted October 10, 2012 Report Share Posted October 10, 2012 (edited) Ds is still in a PANS flair (8 weeks) now. Had 6 weeks 'just starting to feel better' (1st time in 2 yrs.) before flair. Wondering what these test results could mean: TSH: 5.55 (HIGH)- thinking I should increase thyroid meds to 2 a day (1st prescribed by dr.) instead of the 1 1/2 we went with because son did not feel good on 2. CD57: 48 (was 24 1 1/2 yrs. ago) Not at 60 so wondering if should continue on Babesia/lyme treatment or could it be mico? Lymphs: 53 (HIGH) Son was fighting chest infection at the time but these #'s have been high since original PANS flair. Have heard systemic toxicity - any ideas? TGF-b1: 4420 (<2000 range) 3 mos. ago it was 11,000 so improvement but still showing inflammation - have heard this # can change from day-to-day...also mold indicator so thinking that is not part of this flair? Antistreptolysin 0 Ab: 6.8 (normal) Have never seen this but may mean that body is going after strep if high? -Begin. of 2nd week on camel milk. Really only seeing nausea every time he drinks it so has some ginger which helps. Maybe some mood enhancement possible... -Ready to look at GcMAF again to hopefully speed up healing. Anyone else tried? Any ideas would be appreciated. Thanks ya'll (had to say it since my dh just arrived in TX). Edited October 10, 2012 by JuliaFaith Link to comment Share on other sites More sharing options...
SSS Posted October 12, 2012 Report Share Posted October 12, 2012 Hi Julia, I was just reading on a yahoo board I frequent, and some of the feedback there was the GcMAF wasn't working well with the kids with PANDAS and inflammation- I think you get your son ART tested for everything, tho, but just thought I'd share. Dr. Bradstreet in the autism community is doing the shots, but they were stating the rest of the DANS! were staying away.... anyway, best wishes--- Link to comment Share on other sites More sharing options...
JuliaFaith Posted October 12, 2012 Author Report Share Posted October 12, 2012 Thanks for input S&S. Do you know the dates on the feedback? Have read that dr.'s were starting off at a higher amt. but have started doing lower amts. because of inflammation. Link to comment Share on other sites More sharing options...
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