lismom Posted October 9, 2012 Report Share Posted October 9, 2012 I know we are treating as we should. Taking different combinations, for different amounts of time and cyst/biofilm busting, but I didn't anticipate this to be so stubborn. We were told his lyme would take at the least 2 years. But what about the bart? Anyone treating bart still battling this 2 years later? Link to comment Share on other sites More sharing options...
SSS Posted October 10, 2012 Report Share Posted October 10, 2012 We have not been treating that long--- what remaining symptoms are you seeing? I do very much understand treatment fatigue, and am battling that personally. Hang in there----- Link to comment Share on other sites More sharing options...
lismom Posted October 11, 2012 Author Report Share Posted October 11, 2012 We have not been treating that long--- what remaining symptoms are you seeing? I do very much understand treatment fatigue, and am battling that personally. Hang in there----- yes the fatigue was first to come and maybe last to go? and the red stretch marks are at the most intense along with mild facial tics. Very much improved though. Link to comment Share on other sites More sharing options...
rowingmom Posted October 11, 2012 Report Share Posted October 11, 2012 We have been treating DD11 for 1 yr, 5 months. We have run 2 rounds of rifampin/biaxin, pulsed plaquinel and tindamax, and are now using azith/mino/malarone. There has been a rapid reduction of symptoms with this last combo - a lot more rapid than with rifampin/biaxin, only 2 weeks to get to a pretty good baseline, whereas rifampin/biaxin took a good month, but she is still having long-bone pain with exertion. Motor tics are there but hardly noticable and other PANS symptoms are good. We have never seen stretch marks. Been wondering myself if this will ever end. Link to comment Share on other sites More sharing options...
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