Just Update and Psych. idea

[JuliaFaith]

Just posted recently about my son's 'big PANS flair' after a chest infection. The infection went away pretty quickly but the OCD, cough, stomach pain right after eating, nausea, muscle aches, bad thoughts, and noise (tic?) are all still there after 6 weeks but seem to be slowly getting better.

 

Took him in for dr. appt. and she says he is basically testing well medically which was good to hear. Took him off a lot of supplements and kept him on some. Stayed with:

 

Salmon oil/chlorella; Ivy Calm/Bronchfest (lung inflammation); Rhizinate (digestion); Alinia (20 days-finish parasite treatment); Brazil nuts (selenium); Chia seeds (vitamins); yeast suppositories (normally used by woman); Vitamin A drops; thyroid meds; ketotiphen (stomach distress); Grapefruit juice with Lipo-Health (detox), Artemesinin, Mimosa Pudica.

 

She is still recommending GcMAF since healing is taking so long. Also waiting for blood work to come back to confirm ND's muscle testing. ND also jumped on the 'camel milk' idea right away. She said "try it!." Apparently, there has been some dicussion about it in her circles recently. So will be trying some here pretty quickly.

 

Decided to go see our PANDAS dr. after 1 1/2 yrs. to see if she has any new ideas on the PANS front. Our last visit with her she was recommending IVIG.

 

I figure all the medical stuff will take a couple of months and then will make any decisions at that time to see where we go next (hopefully not bankrupt!)

 

Finally, we saw a therapist today that was great! She said that any kids, especially ill ones, need 3 "Fun Factors" every day, (i.e., fun things to do). So we are writing a list to show her at next appt. One I read about in a book was the 'Silly Walk-Monty Phython' which you can find on Youtube. Goofy! Since son is 14, she also recommended as many 'friend' visits as possible every week. Our 'PANS' doctor refers patient to her so she knew about PANS which was great. She also mentioned that the recent concussion could be causing some of the neg. thoughts as it can sometimes take a year for brain to recover. Have always thought my son needed to wear a helmet 24/7!

 

Take care and keep healing!

Edited September 27, 2012 by JuliaFaith