mdmom Posted September 11, 2012 Report Posted September 11, 2012 My DD13 has Bartonella, diagnosed clinically from some of her symptoms and the tell-tale stretch mark rash on her back. LLMD just tested her VEGF level and no surprise, it is high. Before treatment her marks were horizontal stripes across her lower back. Since treatment started they have migrated to her buttocks (and are now vertical), wrapping around the sides of her pelvis and most recently have moved to the tops of her thighs. She tried to find humor in this the other day and told me they will probably travel down her legs and out her toes! Curious to know others' experiences using VEGF levels to monitor Bartonella infections.
mommakath Posted September 11, 2012 Report Posted September 11, 2012 (edited) Believe checking VEGF is part tof Shoemaker neurotoxin testing. Edited September 11, 2012 by mommakath
SSS Posted September 11, 2012 Report Posted September 11, 2012 While we went through the Shoemaker deal with our 1st LLMD, my VEGF was pulled and came back normal. At that point, I had done some Bartonella treatment (had positive high Bartonella test last year) Anyway, focused on Lyme, cysts and parasites for months, then felt like Bartonella was surging back. I am now on rifampin (2 weeks now) and am having good days- even started exercising again! So, my opinion is no, I don't think it is reliable.
Suzan Posted September 14, 2012 Report Posted September 14, 2012 My VEGF was high and my original LLMD wanted to track it to monitor possible bartonella. She retired and my new doc's have not gone down that route. But it was something she felt strongly about and she was a great LLMD. Good luck with your dd! Susan
Iowadawn Posted September 17, 2012 Report Posted September 17, 2012 My DD13 has Bartonella, diagnosed clinically from some of her symptoms and the tell-tale stretch mark rash on her back. LLMD just tested her VEGF level and no surprise, it is high. Before treatment her marks were horizontal stripes across her lower back. Since treatment started they have migrated to her buttocks (and are now vertical), wrapping around the sides of her pelvis and most recently have moved to the tops of her thighs. She tried to find humor in this the other day and told me they will probably travel down her legs and out her toes! Curious to know others' experiences using VEGF levels to monitor Bartonella infections. Our LLMD ran the VEGF on our son, who has battled bart. It came back extremely low. We will consider running the bart test from Galaxy Labs. He said that this would tell us for sure. Right now we took him off all abx so we can run the Bb culture.
mdmom Posted September 17, 2012 Author Report Posted September 17, 2012 Our LLMD told us that having high VEGF not only indicates the activity of Bartonella, but it also has other health implications as well. He said it can make the blood thick and he suggested my DD start taking Wobenzyme (it's commonly used in Europe instead of Aspirin). Anyone hear of this?
SSS Posted September 17, 2012 Report Posted September 17, 2012 Yes, I am taking Bolouke every morning- suppose to also help antibiotics and herbs penetrate deeper. Dd7 is now on the Cowden protocol, and it incorporates Serrapeptase every day- we are only on day 10, but her bowel movements are 100% normal and regulated, perfect- that is big for her.
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