Crying over Potatoes....

[mdmom]

This is nothing short of a miracle that only other parents on this forum would understand....

 

Yesterday morning I put potatoes in the oven to roast - I was taking them to a potluck at church. I did not set a timer, nor did I tell my family that I was cooking.

 

When I returned to the kitchen 1 hour later, my DS15 was eating his breakfast and I noticed that the potatoes had been removed from the oven (and perfectly cooked, by the way). My son announced in a casual tone that he removed the potatoes from the oven so that they wouldn't burn.

 

I started crying - stay with me here - and told him that I was amazed that he was tuned in enough to his surroundings to 1) realize that there was something cooking in the oven and 2) to take the initiative to remove the potatoes so they wouldn't burn.

 

I hugged him and told him that his behavior was nothing short of a miracle and he looked at me in a suspicious teenage way (as if I was being sarcastic).

 

But truly, I told him, it is a miracle that he is now so tuned into his surroundings. I hugged him and told him that we lost him for so many years and that it is a miracle that he has returned to us. He had one foot in the world of autism and slowly the other foot was following until we got the PANS diagnosis almost 2 years ago.

 

Yes, you have all read my whining over this and that since I have joined this forum. But it's these "Potato Moments" that make me realize how lucky my family and my son are to have figured out what was causing all of his developmental/psychiatric issues.

 

I hope you all have a potato moment today.

[beeskneesmommy]

Thank God for "potato moments". So happy for you! We are headed for our 1st (and hopefully only) IVig next week. Is this what brought your beautiful son back to you?

[mdmom]

No IVIG yet, although it's been recommended by 5 docs. Cannot get insurance to pay.

 

I've been whining about not being able to get IVIG for him and my potato moment reminded me that he has made huge progress on agressive Lyme and Babesia treatment and an anti-viral (which we call the magic blue pill). He's been on IV antibiotics and IV antifungals since January. He's also been taking multiple supplements (methyl B12, Low Dose Naltrexone, among others) so it's hard to know what it really working. I imagine it's everything working together that is helping.

 

Still lots of progress to be made and maybe IVIG will be a part of the story. Just not now until we can find a way to fund it.

 

Thanks for understanding my moment

[dut]

Very happy for you

[norcalmom]

I think you've coined a new term. Cherish all your "potato moments"! I'm so happy you are making progress, and thank for sharing you moment and the treatments you've been using to reach it.