Tests to request?

[Ataloss12]

Hello everyone!!

 

We decided to get an Immunologist on board to check for potential triggers, so we have an appt with Dr. B in two weeks. I have received information on labs to request, but thought I would post to see if anyone else can add suggestions? A little bit of background - DD is 5, here are the deficiencies that showed up on Dr. T labs:

VIT D, IgA, IgG2, IgG3, IgG4 were ALL low, in addition to low pneumoccocal titers, abnormal P41 Band on WBlot. The only remaining PANDAS symptom that we are dealing with right now is an occassional intrusive thought (maybe 1-2 per week), and we have had other issues such as: weight gain, vomiting, small bumps all over body (like ezcema). I feel like we might have some allergy issues going on, in addition to PANDAS. Please forgive my ignorance, my head is still spinning from all of this. If any of the forum experts can chime in and tell me what I should request, I would appreciate it! Thanks and God Bless............

[junkyardjean]

I'm relatively new to the pandas front myself, and don't have any thoughts on blood draws - just wanted to share about dd4's excema issues. She has had occasional patchy excema before her first flare, but since her major flare in the beginning of this year, her excema spread and became much worse.

 

We were advised by ND to cut out her meat and dairy protein - theory being that those proteins are very similar to what is already in our bodies, and when people who have immune issues try to break down these proteins after eating them, the mixed up immune cells also go after our own bodies protein as well, causing a variety of symptoms. The plan is to cut them out completely for 6 months (hopefully allowing time for her body to reset), then reintroduce slowly to see if she can handle them.

 

After one month of starting the cut-out, her excema has completely cleared. We got further proof of the issue when we were at a gathering last month where there was only meat, and I wasn't prepared with alternate food for her, so she had 3 bites of chicken. Within 10 minutes, excema had spread across her face and behind - it was unreal....

 

I don't know if this applies or not, but thought I would share if that is okay

 

Good luck - there are many people on this board who are well versed on blood work and what needs to be requested - I hope you are able to find further answers for your child!

[Missmom]

My son always had little bumps mainly on upper arms and legs. I was told it was allergy related. They have seemed to get better as he has gotten older. I think you are on the right track.

[keepfighting]

Try getting vitamin b levels checked. Vitamin b deficiencies can cause personality changes etc.,