pr40 Posted May 29, 2012 Report Posted May 29, 2012 our dd8 seems to have PANDAS with RLS like symptoms and we are looking for others with similar. She is now taking clonazepam 1mg and we are thinking of switching her to neurontin (Gabapentin) since the first drag has no effect other than helping her sleep. In our case RLS is not hereditary. advice? thank you in advance for responding.
EAMom Posted May 29, 2012 Report Posted May 29, 2012 (edited) our dd8 seems to have PANDAS with RLS like symptoms and we are looking for others with similar. She is now taking clonazepam 1mg and we are thinking of switching her to neurontin (Gabapentin) since the first drag has no effect other than helping her sleep. In our case RLS is not hereditary. advice? thank you in advance for responding. whenever I hear of a strange non-typical symptom with PANDAS, I think r/o LYme. So I googled RLS and Lyme and got this: http://www.wellsphere.com/lyme-disease-article/restless-leg-syndrome-as-a-marker-for-unsuspected-chronic-lyme-disease/348430 there's more if you google Edited May 29, 2012 by EAMom
pr40 Posted May 30, 2012 Author Report Posted May 30, 2012 Thanks, EAMom. We tested for Lyme, not sure what test, which came negative, will try it again.
EAMom Posted May 30, 2012 Report Posted May 30, 2012 Thanks, EAMom. We tested for Lyme, not sure what test, which came negative, will try it again. You can post on the LYme board, but it really matters what test you ran. Igenex is recommended.
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