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Posted

our dd8 seems to have PANDAS with RLS like symptoms and we are looking for others with similar. She is now taking clonazepam 1mg and we are thinking of switching her to neurontin (Gabapentin) since the first drag has no effect other than helping her sleep. In our case RLS is not hereditary.

advice?

thank you in advance for responding.

Posted (edited)

our dd8 seems to have PANDAS with RLS like symptoms and we are looking for others with similar. She is now taking clonazepam 1mg and we are thinking of switching her to neurontin (Gabapentin) since the first drag has no effect other than helping her sleep. In our case RLS is not hereditary.

advice?

thank you in advance for responding.

 

whenever I hear of a strange non-typical symptom with PANDAS, I think r/o LYme. So I googled RLS and Lyme and got this:

 

http://www.wellsphere.com/lyme-disease-article/restless-leg-syndrome-as-a-marker-for-unsuspected-chronic-lyme-disease/348430

 

there's more if you google

Edited by EAMom
Posted

Thanks, EAMom. We tested for Lyme, not sure what test, which came negative, will try it again.

 

You can post on the LYme board, but it really matters what test you ran. Igenex is recommended.

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