bulldog24 Posted April 19, 2012 Report Posted April 19, 2012 Got the call my son got approved by ins to get IVIG for a year! He doesnt need it right this second but we have if we need it! What a relief!
fightingmom Posted April 19, 2012 Report Posted April 19, 2012 WOW!!!! Awesome. Glad you don't need it now, but what a relief to know that for the next year, if it comes to that, you don't have to stress over it.
pandakid11 Posted April 19, 2012 Report Posted April 19, 2012 Just curious - what does this cost? I am hearing it is around $10,000 per treatment. Wow. Got the call my son got approved by ins to get IVIG for a year! He doesnt need it right this second but we have if we need it! What a relief!
bulldog24 Posted April 19, 2012 Author Report Posted April 19, 2012 I was told about $6k for my kid 40 lbs
bigmighty Posted April 19, 2012 Report Posted April 19, 2012 Thumbs up! Great news! Thanks for sharing.
thenmama Posted April 20, 2012 Report Posted April 20, 2012 Out of curiosity-- do you know what condition it was approved for-- was it PANDAS, Immune Deficiency, Autoimmune NOS, etc.? So glad it went well for you (and hopefully it wasn't too much of a battle/drain on you) and your kiddo can get the treatment he needs! And it's good for everyone-- whenever one of us prevails, it puts another chink in the wall blocking our kids' care. TH
bulldog24 Posted April 20, 2012 Author Report Posted April 20, 2012 I havent gotten the details yet. We are in the nih study, It must have helped us to be diagnosed by them. If I find out I will let you know. It only took a few weeks and dr b office did everything.
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