Not sure if there is any help for my child.

[MamaOnAMission]

When she is on the bactrim and minocycline for bartonella, she is so much more locked in her own little world. Just stuck on one TV show all day long. The one thing she's able to do is shower and brush her teeth though. When i back down on these antibiotics...she is not able to get herself dressed or brush teeth. She said when she tries....her brain just turns off (her words.) This turning off of the brain happens with any kind of school work too. Anyway....she is on prozac, and it helps with severe OCD, but she is not able to brush her teeth or shower, until I up the antibiotics.

 

I think she has two things going on here. I think the OCD looks a bit better on the prozac, but she needs something else to help with the confusion and not being able to shower, brush teeth or do any kind of learning. I know this is a very scrambled letter. Just tired. Please give me any advice you can give. She is also very mean on Abx. and it never gets better. She is on them for 5 month now.

[socalmom]

When she is on the bactrim and minocycline for bartonella, she is so much more locked in her own little world. Just stuck on one TV show all day long. The one thing she's able to do is shower and brush her teeth though. When i back down on these antibiotics...she is not able to get herself dressed or brush teeth. She said when she tries....her brain just turns off (her words.) This turning off of the brain happens with any kind of school work too. Anyway....she is on prozac, and it helps with severe OCD, but she is not able to brush her teeth or shower, until I up the antibiotics.

 

I think she has two things going on here. I think the OCD looks a bit better on the prozac, but she needs something else to help with the confusion and not being able to shower, brush teeth or do any kind of learning. I know this is a very scrambled letter. Just tired. Please give me any advice you can give. She is also very mean on Abx. and it never gets better. She is on them for 5 month now.

 

 

 

have you tested for mold issues? I ask because mold causes confusion/brain fog. Isn't Prozac a SSRI? i read that' s bad for PANDAS kids.

 

Sorry I can't help more, I just thought to say these things incase you didn't know about them.

[Bill]

I think 5 months is a long time to not see any real improvement. Just wondering if it's time to try a different combination of ABX. Sometimes the doctors seem a little too content to just continue the same treatment. There is nothing wrong with pressing your doctor for a change unless they can clearly articulate why you should not be concerned about this lack of progress over 5 months.

 

Having said that - we measure progress best in 6 month increments. That is, it's hard for me to see my son's progress without looking back six months. Sometimes this is just really slow.

 

Best of luck, bill