feeling so helpless right now.........

[amyjoy]

Hi KIM

 

I can help you.

We would just need to establish your son as a patient in our office, plus I should have copies of his records / labs and we probably need to meet on the phone for 1/2 (ish) once I look everything over.

then i can help you with what you need while you're in this treament gap.

if you'd like more info pm me or look at our office website hillparkmedicalcenter.com

[sleeplessinVA]

I live in VA, tomorrow I am meeting with DD10 with Dr Baig in MD (recommended on another board). If it goes well, I'll let you know, you might be able to get in sooner w/ him or her. My prayers are truly with you tho we've never met. We're both going thru this at the same time in the same place.

Jennie

[Kimflow]

Yes, Jennie, Please let me know how it goes. I will have to look him up. I do think I have read that name before.

 

I also just read a Dr. Shulman is in New York. Does anyone here have any experience iwth her. I found a link to all these videos she made on PANDAS.

 

Interestingly enough, during her one video, she mentioend that with an active infection she gives amoxicillin or a cephalosporin. Then after treatment she will put the child on zithromax as it seems to provide some immunomodulatory function. I have no idea how old the videos are though.

 

Kim

[browneyesmom]

I'll also be interested to know how your appointment goes, Jennie.

 

Kim, I'm uncertain where you are located, but I know the medical center where amyjoy is, is managing PANDAS with a holistic, integrative approach... being on the east coast, we're too far.