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sleeplessinVA

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About sleeplessinVA

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  1. We got the okay to hold off on the steroids so I guess that it's just wait and see. When the bloodwork comes back, what will I be looking for?
  2. I did not realize that steroid treatment could disqualify us from the NIH study. We have given ONE pill, we had planned to continue to the 2 pill dosage today. IS IT TOO LATE TO STOP the course of treatment now?
  3. OK, He has had ONE steroid pill so far. We were planning to start the two pill/day dose today. Is it too late to hold off or can I stop right now?
  4. I can't tell you all how comforting it is to have your ear and your informed advice. Thank you so much for taking the time to reply and connect. I was able to get in to see Dr. Baig today in I found him on Pandasnetwork.org. He has an office in Dunkirk, MD. (Yes, I am in NoVa). I brought the NIH printout that you all recommended, it was very helpful. Again, thank you for that great tip. Dr. B. gave us a prescription for 21 days of cephalexin - 5 ml 2x daily, and orapred - 15mg 2x day for 5 days. I am new to these medications and to be honest, they sccare me just because I know nothing
  5. I live in VA, tomorrow I am meeting with DD10 with Dr Baig in MD (recommended on another board). If it goes well, I'll let you know, you might be able to get in sooner w/ him or her. My prayers are truly with you tho we've never met. We're both going thru this at the same time in the same place. Jennie
  6. I am so glad that I found this site, it is exactly what I have been praying to find, why didn't I find it earlier!? My DS10 just onset what I think is PANDAS about a month ago with a strep infection. He went from typically sweet, happy, healthy, doing well in school and sports to a changed boy in a matter of a few weeks. About a week or two before we had the positive strep test, he started having micriopsia/macropsia, night terrors, repetitive nonsense speech while "awake" at night - horrible nights. then with the fever, he started having hallucinations and urcontrolled body movements, I c
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