Waiting for insurance approval

[cobbiemommy]

DS, 12, is greenlighted for IVIg from doc, but we are waiting (in our second week) for insurance approval. As soon as we get that, we are getting our tickets and on our way. Talked to LLMD, and he said that there was no sign of Babesia, but we would keep treating Bartonella based on rash and symptoms. He is taking Biaxin and Minocin for that part and Augmentin for the Strep issues. We are taking a lot of Sacc Boulardii to help prevent diarrhea.

 

Today, he had allergy shots (3) and orthodontia visit. Never should have been done on same day. Son is crying about the braces, sad about all the meds and shots, etc. He is really bummed. I can't say I blame him. Only good thing is his sadness was rational and reasonable, but still heartbreaking.

 

DD, 15, started Biaxin as well for her Bartonella. She was already on Minocin. Now, she is seeing an increase in her energy levels and a decrease in her rash. Hope she is over her symptoms in a short while.

 

I am asking for prayers for insurance approval for DS's IVIg. I know from past experience, he will feel better and have more energy. He is like a different kid after the IVIg. If you are a praying kind of person, please remember him in your prayers.

 

Cobbie

[fightingmom]

We will have all our fingers and paws crossed over here...(and that's a lot!).

These insurance companies need to get with the program! Hope your DS wakes up tomorrow feeling better.

[trggirl]

We will be praying!

[minimaxwell]

Prayers sent! Good luck.

[cobbiemommy]

The waiting starts all over again. Somehow the left hand didn't know what the right hand was doing and the doctor's office filed for IVIg under our old insurance. We have now wasted three weeks. I am so discouraged as I see my son getting more and more fatigued and cranky.

 

How frequently can a steroid burst be done? It has been nine weeks since the first one.

 

Waiting is definitely the hardest part.

 

Cobbie

[Kiera]

You can have the Dr request it be processed expedited. Do you have an ins. that provides ivig for pandas or do you expect to have to appeal for it?

[cobbiemommy]

You can have the Dr request it be processed expedited. Do you have an ins. that provides ivig for pandas or do you expect to have to appeal for it?

 

I have no idea how they will handle this. I have only worked for this company for three months, but I am very hopeful. I am hoping to get it approved because of lack of strep antibodies and low igg. Also, like most people here, his condition has went autoimmune. Will request that the doctor expedite the request.

 

Cobbie

[LNN]

FWIW, even tho Sacc B is supposed to have all positives and no negatives, my DS and I both have issues with it. It seems to agitate him and make him act out, lose impulse control - sort of like yeast would. For me, it makes me bloated/gassy. When we go off of it, we both improve. As usual, we don't follow the script. I only mention it in case you don't like what you see.

 

Fingers crossed for you.